Pediatrics Data Platform Announced at White House Precision Medicine Initiative
This is one of the more important projects of the year. I went to a seminar last week where Dr Resnick demonstrated it. The system has amazing capabilities already. You can have the child's brain tumor sample analyzed and uploaded into the system and it will figure out which are the most important mutations driving the tumor growth and which drugs are available or in trials which may be useful against this tumor. You can see how your tumor compares to all of the other samples with your tumor type.
The Musella Foundation gave Dr Resnick a grant last year to help add and analyze DIPG samples with this system!
You Can Vote to Help ChadTough Win $100K for DIPG Research Our friends at the Chad Tough Foundation are in a contest with ESPN. Whomever gets the most votes over the next 10 weeks gets $100,000 for their charity. It is free to vote but you need to sign up to espn.com. You can vote every day.
A randomized, placebo-controlled pilot trial of armodafinil for fatigue in patients with gliomas undergoing radiotherapy. This was a surprise. Nuvigil (armodafinil) is a drug approved to treat excessive daytime sleepiness associated with sleep apnea, narcolepsy and shift work disorder. It is similar to Provigil which although approved for the same sleepiness, has been used for many years off label to treat fatigue from brain tumors and brain tumor treatments. Nuvigil is an enantiomer of Provigil.