Update published for "Treatment Options For Glioblastoma and other Glioma" This is the most important article on our website and is updated once a year.. Ben Williams originally wrote the book: Surviving Terminal Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About" in 2002. Since treatment change so rapidly, it needed an update every year, and Ben graciously allowed us to host the yearly updates to distribute for free. This year, for the first time, our medical editor, Stephen Western, helped Ben update it. New this year is an easy way to see changes from previous editions - they are now in red. They did a great job and this is a must read for anyone who is interested in Brain Tumors.
NY Islanders fundraiser for Brain Tumor Research! This is your chance to meet and hang out with me and other families dealing with brain tumors while enjoying the first game of the season at Barclays! Always a fun event!
MANY CANCER PATIENTS MUST FACE BANKRUPTCY—OR DIE This is a huge problem for our brain tumor patients. I get phone calls every day from patients who can't afford their treatments. We were able to help a lot of them with our assistance program but that program is now closed as we ran out of funding. But the calls still come. Heart breaking. That was just a band-aid on the major problem: the insane system we use to get new drugs developed. My dream is to develop a cure as a nonprofit and be able to get it to all of the people who need it at a reasonable cost.
Tamoxifen Induces Cytotoxic Autophagy in Glioblastoma. I had a relative do great for over 5 years with high dose tamoxifen for her gbm. It was relatively popular before Temodar came into use. Studies showed that it helped a small % of patients, but when it helped, it helped a lot. And it had minimal side effects. This article might explain why it helps some patients and not others. More research needs to be done.
