Musella Foundation Webinar Series These webinars will start this Sunday and we have a great lineup and will be adding more topics! The first event is a must see. There are some issues around the use of chemotherapy and steroids for patients who are exposed to the Covid-19 virus.
Beat19.org This is from our friends at Cancer Commons and xCures.. they are running a virtual trial of the Covid-19 virus. They do not tell you what treatments to do (yet), but will gather information on how the virus affects you, which treatments you decide to do and the outcome. By working together on this, we will get the answers we need quickly. The current research is all over the place - hundreds of small studies that are not centrally gathered and analyzed. This study will cover all of the treatments and quickly let us see what helps the most. This study is IRB approved and listed on clinicaltrials.gov, and is run by a group of experts.
My interest in this project is to see the effects on brain tumor patients. See if they are more or less likely to catch it, based on the chemotherapies and steroids they are taking. And to see how they do. Nobody has studied this yet and we need to know.
There is absolutely no cost to participate. Signing up is easy. Then there is a daily survey where you tell them about any changes in your status or medicines and how you are feeling. You can let your entire family sign up. They want people who are not sick as well as those already sick.
