Latest News

• Brain Tumor Awareness Month Webinars!          These webinars are very informative and give you the chance to learn new things about brain tumors. They are all scientific. ! Well worth going to the live events! We will try to record them and post them on the website, but by going to the live event you can ask questions of the experts!    
  



• xCures launches xACCESS for Providers         xCures is the company we use to run our registry and helps with our patient navigation program and they ran our Onc-201 expanded access program.  (As a disclaimer, I am a consultant to xCures and own some xCures stock).  They are now running a few other expanded access programs, including one for brain tumors with KRAS, NRAS, HRAS, BRAF, MEK, and ERK mutations.  This announcement is about a new portal for doctors only where they can easily register patients for these expanded access programs. We have found that many doctors do not have the time to help a patient access a treatment via expanded access. This portal will make it a lot easier for them to do it, and make it much faster for them and you. They can also submit the required follow up information quickly in minutes.   This is a big advance for doctors and removes a barrier to expanded access.
  



• Curing Benign Paroxysmal Positional Vertigo in Patients With Brain Tumor: Case Series and Literature Review        Sometime we forget that brain tumor patients do get unrelated problems.  It is not always due to the tumor!    Sometimes the positioning of your head during the surgery can trigger Paroxysmal Positional Vertigo and there is a really simple fix for most cases. You need to see an ENT doctor who can do a simple manuveur which cures it in some cases.   Obviously talk to the neurosurgeon first to see if they think you are healed enough from the surgery to have the manuveur!