I think that all patients should sign up for this service. It is free to you (and you can get a $100 gift card if you do the survey after getting the options report). It is useful even if you do not need to make a decision immediately - the records will be in place and organized so if a recurrence happens - you are not left scrambling to find and organize everything.
1. It will help you organize your medical records. xINFORM takes medical records as PDF files and extracts the important information into a structured format that is easy to read. xINFORM will automatically update the records as needed (if you give your permission - otherwise you can upload the records periodically). It then provides you with ideas for treatments. These can be clinical trials, experimental treatments, off label cocktails or standard treatments. You can update the list of options whenever something changes.
2. It helps your doctors - they can see at a glance the important information about your medical history, and our report helps narrow down the hundreds of possibilities to a managable few. And finally if you and your doctor decide to pursue a treatment via expanded access or under the right to try laws, our team can help with the paperwork and phone calls - saving your doctor a lot of time and aggravation! Your doctor can get access to a different xCures program where they can manage multiple patients through the process if they like.
3. Your participation helps all other patients with a similar case. We observe what treatments you do and the outcome so we can identify treatments that are working - and those that are not working. Every individual is different of course - but in the case of cancer - playing the odds of trying what worked better in similar cases is better than finding an article on the internet and trusting it.
The Musella Foundation's webinar on 9/24/21 was on "xINFORM - Personalized Treatment Options Software". This is a critical part of our patient navigation program. This new software gives patients a graphical view of their medical history, as well as an options report that is customized for them to show what may be the best treatment options for each patient.
We just posted the recording of the webinar on our web site in case you missed it. It is worth viewing for any brain tumor patient. Actually - it is now available for many types of cancers such as pancreatic, ovarian, lung, breast, and colon cancers.
Although we tested the software thoroughly, we need feedback on the process and report. For a limited time, xCures will give you a $100 Amazon gift card if you go through the process and take a 15 minute survey.
The best thing about this system is that it learns from every patient, so by participating, you not only help yourself and your doctor, but you also help all other patients with a similar case to yours!
For more details and to register for the project, go to https://xcures.com/details/xinform-musella/
This project is a collaboration between the Musella Foundation For Brain Tumor Research And Information, Inc, Cancer Commons, and xCures. (I explain the relationship of these 3 organizations in the video!)