Al's Comment:
This video explains how you can donate your child's brain tumor tissue. This can be from a surgery if there is extra tissue available, or from an autopsy. The donation will help the researchers design better treatments. It is an interesting video and shows how the donation will be used.
Posted on: 08/29/2023
Within the pediatric brain tumor research community, the Children's Brain Tumor Network (CBTN) and Gift from a Child (GFAC) stand together to advance understanding and treatment of
these complex conditions, with a shared mission that no child has to suffer from a brain or central nervous system tumor. At the heart of this commitment lies the journey of tissue—one
that encompasses enrollment, preservation, transformation into data, and hope for future improvements in care.
The process of enrolling these young patients to donate tissue samples highlights the level of respect and care given to each child and family that participates in the GFAC program. Starting
with informed consent, each patient becomes a partner in the research journey to help advance our understanding of brain tumor biology. Each unique, collected sample is treated as a
precious resource and utilized to its fullest extent to benefit other children. These samples create a rich tapestry of clinical and genomic data that can empower the development of better
drugs or therapies.
The significance of tissue in childhood brain tumor research cannot be overstated. As these anonymized samples are collected—samples which otherwise would have been
discarded—they can be transformed into data to be accessed by the entire global research community.
We invite you to dive deeper. Witness the complex processes, unwavering dedication, and
transformative power of collaboration in action by watching this important video:
The Journey of
Your involvement matters, and together, we can pave the way for brighter tomorrows.
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