Brain Tumor Symptoms

Brain tumor symptoms vary from patient to patient, and most of these symptoms can also be found in people who do NOT have brain tumors. Therefore, the only sure way to tell if you have a brain tumor or not is to see your doctor and get a brain scan.

Brain tumors are rare, so most doctors do not think of brain tumors right away. If you are concerned, ask them if it is possible that you have a brain tumor. A common theme we hear is that the doctor never considered a diagnosis of brain tumor.

We did a survey of about 1,400 brain tumor patients to learn what symptoms they had that caused them to seek medical care. You can see the full results at the bottom of this page. The survey is now complete.

They reported:

  • Headaches: This was the most common symptom, with 46% of the patients reporting having headaches. They described the headaches in many different ways, with no one pattern being a sure sign of brain tumor. Many - perhaps most - people get headaches at some point in their life, so this is not a definite sign of brain tumors. You should mention it to your doctors if the headaches are: different from those you ever had before, are accompanied by nausea / vomiting, are made worse by bending over or straining when going to the bathroom.(1)
  • Seizures: This was the second most common symptom reported, with 33% of the patients reporting a seizure before the diagnosis was made. Seizures can also be caused by other things, like epilepsy, high fevers, stroke, trauma, and other disorders. (3) This is a symptom that should never be ignored, whatever the cause. In a person who never had a seizure before, it usually indicates something serious and you must get a brain scan.

    A seizure is a sudden, involuntary change in behavior, muscle control, consciousness, and/or sensation. Symptoms of a seizure can range from sudden, violent shaking and total loss of consciousness to muscle twitching or slight shaking of a limb. Staring into space, altered vision, and difficulty in speaking are some of the other behaviors that a person may exhibit while having a seizure. Approximately 10% of the U.S. population will experience a single seizure in their lifetime.
  • Nausea and Vomiting: As with headaches, these are non-specific - which means that most people who have nausea and vomiting do NOT have a brain tumor. Twenty-two percent of the people in our survey reported that they had nausea and /or vomiting as a symptom.

    Nausea and / or vomiting is more likely to point towards a brain tumor if it is accompanied by the other symptoms mentioned here.
  • Vision or hearing problems : Twenty-five percent reported vision problems. This one is easy - if you notice any problem with your hearing or vision, it must be checked out. I commonly hear that the eye doctor is the first one to make the diagnosis - because when they look in your eyes, they can sometimes see signs of increased intracranial pressure. This must be investigated.
  • Problems with weakness of the arms, legs or face muscles, and strange sensations in your head or hands. Twenty-five percent reported weakness of the arms and/or legs. Sixteen percent reported strange feelings in the head, and 9% reported strange feelings in the hands. This may result in an altered gait, dropping objects, falling, or an asymmetric facial expression. These could also be symptoms of a stroke. Sudden onset of these symptoms is an emergency - you should go to the emergency room. If you notice a gradual change over time, you must report it to your doctor.
  • Behavioral and cognitive problems: Many reported behavioral and cognitive changes, such as: problems with recent memory, inability to concentrate or finding the right words, acting out - no patience or tolerance, and loss of inhibitions - saying or doing things that are not appropriate for the situation.

    IF you think something is wrong, go see your doctor. Explain that you are worried it is a brain tumor. Keep in mind that brain tumors are relatively rare compared to most other disorders, so the primary care doctor is not usually going to be thinking it is a brain tumor. They first think of more common causes of the symptoms. Sixty-four percent of the time, the doctor thought it was NOT a brain tumor when respondents first went to the doctor. More than half of the people reported that they had the symptoms for more than a month before the correct diagnosis of brain tumor was made. With the malignant brain tumors, a delay of a month in starting treatment can make a major impact on the outcome.

There is a more detailed paper on brain tumor symptoms at: symptoms.pdf


We did a survey of our members who have a brain cancer and asked what signs or symptoms did they have that made them think "do I have a brain cancer?" and how they were diagnosed with a brain cancer. This is what they said:

1. What type of brain tumor do you have? (3817 responses)
Tumor Type # %
Acoustic Neuroma49312.9%
Anaplastic Astrocytoma50113.1%
Brainstem Glioma43011.3%
Glioblastoma Multiforme (GBM)56314.8%
Low Grade Glioma38310.0%
Meningioma43511.4%
Metastatic Brain Tumor2646.9%
Oligodendroglioma2566.7%
Other Benign Brain Tumor2967.75%
Other Malignant Brain Tumor1965.1%

Survey Results As Of 11/20/2019

1. What type of brain tumor do you have? (4032 responses)
 Acoustic Neuroma 504 12.50%
 Anaplastic Astrocytoma 510 12.65%
 Brainstem Glioma 439 10.89%
 Glioblastoma Multiforme (GBM) 582 14.43%
 Low Grade Glioma 399 9.90%
 Meningioma 482 11.95%
 Metastatic Brain Tumor 274 6.80%
 Oligodendroglioma 275 6.82%
 Other Benign Brain Tumor 346 8.58%
 Other Malignant Brain Tumor 221 5.48%

2. Which of the following symptoms did you have which led to the diagnosis of your brain tumor? (15797 responses)
 Headaches 2443 60.59% of patients
 Strange feeling in your head 2040 50.60% of patients
 Seizures 1622 40.23% of patients
 Problems finding the right words 1731 42.93% of patients
 Weakness of the arm(s) or leg(s) 1780 44.15% of patients
 Nausea / Vomitting 1641 40.70% of patients
 Problems with vision 1808 44.84% of patients
 Problems with sensation in your hands 1429 35.44% of patients
 Strange smells (that other people don't smell) 1303 32.32% of patients

3. Did you have any other symptoms that are not listed above?
  1. Tinnitus and noticing I might be going a little bit deaf. Realising I didn't immediately recognise people like I used to. And occasionally the ground would move under my feeltfor a split second.
  2. Tinnitus in both ears - a high pitched whistle noise and lately a noise just like a Hoover in my ear when I wake up. And every now and then the ground beneath my feet moves. I'm just standing there and the ground jerks causing me to wobble but not enough to actually fall over. Sometimes I get migraine aura - flashing colourful arcs in my vision. I feel like I'm wearing a hat that's a bit too tight. And I'm tired. And once my eyes got stuck focussing on different distances for a moment And then I had a sharp headache.
  3. Dizzyness, falling(every single day) Pain in ears almost like middle ear infection.
  4. balance problems and vertigo
  5. vomitting
  6. Irritability weight loss seeing black dotts
  7. Earache
  8. Head feeling heavy and strange like it was flipping
  9. Problems with memory and speech. Unable to say the right words at the right time
  10. Migraines
  11. Right hand tremors occasionally for 4 years, before full seizure which led to diagnosis
  12. burning sensation in neck
  13. cold brain
  14. Swallowing, speaking, balance poor
  15. Gliosarcoma grade IV Behaviour change first. Little tolerance for people and family
  16. dizziness, tiredness, forgetfulness
  17. light headedness
  18. confusion forgetting things short term memory loss exhaustion impatience
  19. Vision
  20. No
  21. mastoid bone pain, hear loss, ear fullness, vertigo, sinus blockage
  22. memory
  23. Nose bleeds
  24. Irritability, insomnia, lost of concentration, sleepyness
  25. "detachment" between left side of body (mostly arm, hand, etc.) and the brain. I had bright flashes and then a 'detached' feeling from left arm to brain.
  26. Metalic taste in mouth
  27. no not yet
  28. no
  29. I was fatigued for years and thought I had ADD for about 8 months before diagnosis
  30. mild stroke-like feeling
  31. spacial problems examples walking in to traffic,putting on shirts, left to right, front to back
  32. MIGRANE
  33. stabbing internittment pain on the back part of my head stiffness of neck
  34. Change in taste buds. Everything tasted like it had pepper on it. I had been changing the order of my words in a sentence for about 3 years. Thought that wasn't normal.
  35. off balance trouble being awaken trouble getting to sleep chest pain numbness in pinky or thumb
  36. vertigo
  37. headaches,weakness
  38. Vertigo
  39. CONCENTRATION MISSING
  40. Hello my loved one! I want to say that this post is aesowme, great written and include approximately all important infos. I?d like to see extra posts like this .
  41. no
  42. Dizziness, onset of sudden pain in the head
  43. persistent worry...
  44. Epileptic seizure
  45. no
  46. dizziness, and drowsiness i didnt have full seizures though just shakes in my arms and legs which i was later told were actually minor seizures
  47. i am having signs of altimers.i am only 45 and no insurance and i really hurt bad
  48. Fatigue, Deppression
  49. personality change
  50. memory word recognition spelling
  51. pain in the crane, left side of the brain infrequent neausea
  52. Pressure in head, hurts worse when moving, neck pain.
  53. Hearing loss, dizziness, irritability.
  54. a little headaches and strange feelings in my head
  55. The only symptom was intermittent tingling on the left cheek
  56. Sweating, difficult to walk,gaining weight, feeling tired all the times&sever pain behind my butt&the left of my body.
  57. Feeling like something is not right, problems multitasking, working.
  58. I have a brown mark in the side of my left hand and feel is burning
  59. high anxiety!! bad dreams...crazy thoughts
  60. SLEEPINESS DURING DAY, POOR APPETITE,FREQUENT URINATION
  61. leaking breasts
  62. uncontrolled head movement, although fully aware failure to interact with environment(5-10secs)
  63. foot turned in and I had problems walking
  64. Focal seizures
  65. milk discharge from breast
  66. epilepsy
  67. yes periods stopped and hormonal imbalance
  68. hearing problem
  69. one foot turned outward when sitting on floor with feet extended during aerobic warmup exercise class dizziness left hand, fingers and arm was paralyzed for 10 min. after carrying a bucket of water
  70. some problems with balance. (I also had some symptoms for a long time that I didn't know were related until later such as hiccups and a strange feeling in my ear)
  71. dizziness, hearing loss
  72. Numb legs
  73. Memory problems.
  74. In the two years prior to being diagnosed my wife would occassionally wake me up and tell me that she heard a "clicking" in my head (only while I was sleeping and my head in a still position). She said it sounded similar to a pingpong ball being hit back and forth at exactly timed intervals between clicks (maybe 1 second or so). The clicking only stopped when she woke me up and the position of my head shifted. This happened about 8 to 10 times over a period of about 2 years.
  75. Mood disturbances, emotional outbursts, lip tingling, lightheadedness
  76. I had had an episode of vertigo which was diagnosed by my chiropractor as Menieres Disease about 5-6 years previously which may be related.
  77. loss of memory muscle spasms
  78. L-SIDED CARPEL TUNNEL SYMPTOMSMISDIAGNOSED AS PREMENOPAUSAL ISSUES
  79. slurred speach
  80. mood swings, tingling lips, light headedness, dizzy, annunciation
  81. balance problems, falling, tremors rt. shoulder, arm, hand, diaphram.
  82. Left arm just hung at my 6 year old son's side. He could not use his fingers. His left foot dragged.
  83. burning sensation in the side of the head
  84. Mood Swings, light-headeness
  85. dizziness, eye "halos", neck pain, hearing loss
  86. Hearing loss
  87. stroke
  88. hearing problems,Behavioral and cognitive problems,drowsiness
  89. dull pain below the left ear
  90. numbeness down the whole sid eoofthe body
  91. balance, intentional tremors
  92. Dizzines
  93. felt like I was getting stupider...couldn't remember information-perform basic tasks-thought I had 'chemo' brain
  94. memory loss
  95. Only siezures Spasms of left stomach muscle area, then left leg numbness and finally progressed to shaking Had about 5 min warning. 5 doctors before an MA requested a MRI. First 1997- MRI in 2002
  96. feeling of Pressure in life situations
  97. Chronic neck pain Personalty changes Hugh weight gain
  98. hearing voices
  99. Incontinence, deep depression, ear-ache that lasted at least 6 months,lethargy, change in personality; all of which I was only treated for the symptoms and not the overall problem.
  100. I was noticing a loss of hair. Not an abundant amount but every mornig I would wake with 10 - 15 hairs lying there on my pillow. That has since stopped post surgery and treatment. I was not going bald by any means but it was always strange that I had unnoticable hair loss to everyone else but to me.
  101. I was lactating.
  102. I have no symptoms. 2.5cm tumor found during MRI for something else seven years ago. No growth.
  103. dizziness
  104. dizzy, see stars,
  105. melanoma
  106. swalling face, hives
  107. Grand Mall Seizure landed me in the ER resulting in a cat scan being done that showed the baseball size tumor. That's what LED to diagnosis. All the above syptoms had been experienced and reported for years but diagnosed as a variety of other things mostly psychiatric.
  108. we thought the symptoms were from a mini-stroke. Depression,anger,confusion.
  109. Anger management problems (i.e., inability to self-regulate emotions)
  110. strange loss of feeling in my right left side of face...flashing lights and horribel headache...put into hospital w/fle and release w/suggestion it was in my head...next day my left eye closed!
  111. Drooping right eyelid. Slight bulging of eye.
  112. Involutary clenching of hand lasted approximately 30 seconds. Up to 4 times a day. Sometimes 2-3 days a week, sometimes 6-7 days a week.
  113. Hearing loss one side
  114. Inability to comprehend directions, or in what order to do a task when my wife would try to explain it,I would become angry. Just a few days after experiencing the above, I had a grand mal seizure which led to me being hospitalized.
  115. tingling down to my toes from my head on one side of my body. like electric shocks.
  116. Nausea was associated with motion. When I leaned over or sat up from bed I vomited.
  117. loss of balance
  118. Extreme Fatigue
  119. Pain in neck and back, limbs trembling
  120. NO
  121. Loss of balance; "pumping" or throbbing sensation like hearing heartbeat in right ear; flashing lights or aura around periphery of right eye.
  122. Dizziness, balance problems
  123. Tiredness
  124. Hitting the wrong keys on a computer keyboard.
  125. vertigo
  126. Yes. Chronic runny nose. (GBM is in the frontal lobe).
  127. Loss of Coordination in right arm
  128. Left side of face week and mouth drooping (GBM is in right temporal area)
  129. wide gait when walking at the age of 15 months, 3 small siezers, right head tilt every few minutes.
  130. Held left hand to chest with thumb pointing out sometimes. Couldn't explain why--it just felt good. Dragged left foot sometimes. Stumbled occasionally.
  131. No other symptoms
  132. confusion and strong auras that we had no name for at the time
  133. Pain behind eye
  134. Personality changes that my family noticed
  135. no
  136. suffered mostly from vertigo and slow, gradule loss of balance, numbness of face not pronounced on either side..was sent home frm er, and was told it was probably skin cancer spot on forehead that caused numbness
  137. NO
  138. lethargy
  139. absent-mindedness problems with short-time memory problems with concentration
  140. My husband had only partial or focal seizures, which he described as being in a dreamlike state for a couple of minutes, feeling flushed all over his upper body, and smelling a terrible smell that he could not quite identify, but knew he had smelled somewhere before.
  141. Found out that when my daughter had strep throat and high fever two months before her surgery that she was blind for a little bit, but did not tell us this until several months later.
  142. No
  143. Two dizzy spells in the 6 weeks prior to the grand mal seizure
  144. no headaches. i would get what felt like lightening striking my head at various times. so painful one time it literally felt like i had stopped breathing.
  145. fatigue, and loss of knowledge of where my left hand was if I wasn't looking at it. Also, going down stairs was difficult if I wasn't looking at the stairs.
  146. No.
  147. Visible Numbness in my face/mouth-just before CAT SCAN Recurring sinus infections for 2+yrs
  148. Yes, Mom had problems writing some things. When writing a grocery list for example, she could write "saran" but could not write "wrap". When she went to the ATM machine, she could put in her access code, but could not push the button requesting $50.
  149. Had mono at the same time so misdiagonesed as mono
  150. had difficulty with knowing the time of day, could not read words.
  151. Drooling and off balance
  152. Intermediate memory loss
  153. The patient's aphasia was not apparent to the her. She was not aware that her use of nouns was not appropiate to what she was trying to convey. To her, she was making perfect sense and was put off by the "fact" that there was something wrong with me that I could not understand her.
  154. Balance and feeling like I was in a fog.
  155. Difficulty writing, e.g. reading back what was written and finding it didn't make sense
  156. Aura
  157. Constant fatigue
  158. Left side of face drooped slightly. I spoke differently, at least according to my husband.
  159. Not prior to diagnosis
  160. some memory loss, then a grand mal seizure
  161. Words sounded garbled.
  162. Excrutiating facial pain..TN
  163. The Doctor was looking for a reason for unexplained fever, which had nothing to do with my brain tumor.
  164. missed monthly periods starting at age 42. Physicians thought I was going thru menopause, but bloodwork suggested otherwise. Elevated prolactin level led to MRI, hence meningioma discovered.
  165. unsteadiness,fatique
  166. loss of interest in hobbies and friend and family
  167. when I drove on the interstate,which would be faster than in town, I guess, I felt like the car was going off the road to the left.
  168. I am told that my symptoms are not related to the tumor, but no MD can tell me what is causing the symptoms. I have also had multiple head ijuries and probable Lyme D. Other symptoms include dizziness, balance problems, short term memory problems, both short term and remote, visual sensations, difficulty learning new material, fibromyalgia, pressure in the head, cold sensation on face, numbness in different parts of body and The left eye is drooping, cramping in numerous parts of my body. As I said, none of these symptoms are attributed to the tumor.
  169. Don't know as my daughter was only 1 year old at time of diagnosis.
  170. Face droop. Problem making decissions. Clutter/disorganization. Unable to do simple math (balance checkbook)
  171. jerking of right leg lasting for approx.2minutes and then everything was fine
  172. Ear cartilage and deep in ear into head hurt hurt. restless legs with very hot feet at night. buzzing in bottom of one foot. Squish, squish sounds in my head when I turn it any which way or walk heavy ,if I walk heavy or the car goes over a bump. Eye lid twitches and some time feels like it is pulled real tight. Picky pick feelings on my face.
  173. severe memory problems problems with concentration and organization loss of balance
  174. Balance
  175. lost of hearing, dysphagia, lost of voice, speach difficulties
  176. Dizziness, falling
  177. Had problems with hoarseness
  178. a band of pressure in the back of my head that prevented me fron lieing on my stomach. off-balance, vertigo
  179. decreased hearing on affected side
  180. "Zoning out" and forgetfullness
  181. imbalance "listing" falling
  182. My father showed symptoms similar to a stroke. Drooping mouth, swelling left hand, slightly dragging his left foot when he walked.
  183. lack of emotion, lack of concentration, loss of bowel control twice, vomiting and naseau once, lack of interest in family events (right frontal lobe meningioma)
  184. Only in hindsight - left hand weakness and problems learning new material
  185. no: the sole symptom was simple focal seizures.
  186. spacial orientation....would reach for something and it may be just inches away
  187. Personality changes. Lack of concern over the usual things. Unusual behavoir.
  188. Under "strange feeling in your head" -came unsteady gait with depth/perspective problems As I understand now, most of my symptoms were due to the hydrocephalus which was caused by the tumors so I'm not sure if these qualify???
  189. strange sensation on the right side of the face. Slurred speech
  190. dizziness
  191. It wasn't weakness in my legs, just clumsiness -- which may not have been a sympton afterall. But the clumsiness has definitely gotten worse.
  192. None apparent but possibly some things that were thought to be just ordinary at the time.
  193. SPORADIC BLINDNESS (VISUAL LOSS) THAT WAS VERY FRIGHTENING, HOWEVER, I NEVER TOLD ANYONE...DUMB HUH?
  194. My daughter, Shannon OBrien saw purple lights in her peripheral vision to the right side (tumor was right front),before having a grand mall seizure 1994 reurance anaplastic oligo grade III 2000.
  195. Al, I'm submitting this about my son's tumor. It was a PXA, grade 2 (that does fall in the category of low grade glioma, I believe). He had no other symptoms... just one grand mal seizure. It did not show on CT scan so the original team felt he had some "seizure disoreder"... NS consult ordered MRI and tumor was located. That happened within a couple of days of the seizure.
  196. No, Pat was dropping things.
  197. dizziness, chills, feeling outside of myself
  198. hearing loss when having the headaches.
  199. yes, poor short term memory, very tired and when writing, could not keep text in line. Could not concentrate to add.
  200. seizures were focl/sensory seizures on one side of the body
  201. Memory loss, got lost driving in my own neighborhood. Did not know my own backyard. Did not know who was this man sleeping next to me (my husband of 19 years).
  202. sagging skin on left side of face (tumor on right side; also whooshing sound in my head followed by nausea and spacey consciousness three months before my diagnosis. That's when headaches started. Also had what felt like "water on the ear".
  203. Recurrent sinus infections Dizziness/Vertigo
  204. My daughter, Shannon OBrien saw "purple lights" in her peripheral vision off to the right before grand mall seizure (her tumor wes right front temporal lobe).
  205. Feet seemed to get tangled easily. Also, started having trouble with putting the right numbers into the checkbook and doing the addition/subtraction.
  206. Had none of the above symptoms, but had some depression, no motivation, and memory problems.
  207. Pains in the arms and wrists
  208. Flu-like symptoms diahrea, vomiting and bad headache
  209. Gradual loss of hearing on the side of the tumor- attributed to a possible sinus problem Note: The "strange smells" were quite subtle and intermittent and never reported to my doctor (Primary care physician) Specialist pushed for MRI
  210. Tired--
  211. Off balance, leaning to the left
  212. horrible extreme fatigue - feeling like I had been up for DAYS. Dr.s are unsure what caused this symptom - possible seizures in my sleep or my body fighting off the tumor that I didn't even know what there
  213. Violent and weird behaviors, emotional problems
  214. Nausea in my stomach that rose up into my head Then feeling extremely flushed in my face and feeling that I might pass out.
  215. Drove left of center on the highway Complete personality change Problem with initiation
  216. some personality change-distrusting, short-tempered, fatigue
  217. neckache extending down to back which is took him to chiropractor - after listening to his ailments thought he should see neurologist and chiro. took it upon himself to make appt. for Stephen.
  218. Balance Lethargic - wanted to lay in bed and sleep all day
  219. Tingling in nose, then fingertips. My seizures last 2 minutes.
  220. I had more tremors, then seizures
  221. Eyes fixed left, unable to center Ataxia
  222. Dizziness
  223. my seizures were flashing lights and visual distortions ( felt like I could see through walls)
  224. depression, mood swings, strange sensation in face on side of tumour, changing vision, chronic fatigue,
  225. no symptoms at all. i had a stroke.
  226. no period for 4 months prior and only 35
  227. hearing loss, dizziness when trying to lie down, poor apetite
  228. I am submitting this as a caregiver. My Dad died in 12-01. He never mentioned any other symptoms. He initially stopped talking to us and had what we thought was a virus, with headache, nausea, vomiting. He was never one to complain, so we had to insist that he go to a doctor. He told us after diagnosis "I know what I want to say, but I don't know how to say it".
  229. A vein in the tumor was hemoraging slowly, bulding up blood n the area. Causing presure.
  230. Numbness in hand and arm and slurred speech
  231. numbness that spread downward starting in my face (similar to your foot falling asleep)--only on my left side. My tumor was located on my right side.
  232. Lethargy
  233. Problems driving a car. Disorientation.
  234. swallowing problems,breathing difficulties,tremors
  235. Strange tastes- occasionally.
  236. Balance problems
  237. Numbness left side of face, tongue, roof of mouth (trigeminal nerve areas only)
  238. irritability
  239. Subarachnoid Hemorrhage was the only indication. The tumor triggered the hemorrhage. No headaches previous to that, just a weird sinsation sometimes.
  240. Slering of speech
  241. LEFT side facial numbness, hiccups, dry mouth, lack of appetite, slight loss of taste, balance problem (slight ataxia), FATIGUE
  242. mild dizziness and neck muscle twiches
  243. No symptoms led to diagnosis. Discovered by accident. Subsequently found that droopy right eyelid and slowly tracking right eye were caused by exophytic portion of tumor
  244. I had an abnormal(bacharcardia-not sure of the spelling, sorry) slow heart rate, which was found first in cardiac testing. After the tumor was found the heart rate was related to the tumor.
  245. Hear attack
  246. In reality it turned out I was having seizures but I kept telling my husband and friends about these horrible nighmares I had had while sleeping. My teeth would be clenched and I could not move to get my husband awake in the bed next to me to help me. The sound of my teeth crunching together was terrible and then nothing...I awoke but remembered because I was so sore the next day what had happened. I would and still do have a headache.
  247. fatigue, temper
  248. Hypoglycemia
  249. I had low grade H/As for several years prior to having a seizure which I never gave much thought to. Perhaps it was tumor related - I don't know and my docs never pursued.
  250. Coordination problems - could have possibly been from the double vision.
  251. Tingling, burning sensations in my face. Growing instability on my feet for no apparent reason.
  252. intention tremor irritation with noise (?)
  253. Yes, incontinence, forgetfullness, and deep sleep.
  254. Neuro deficits - forgetting how to write, type, making foolish errors at work
  255. Neuro deficits - forgetting how to write, type, making foolish errors at work
  256. Pain in neck area
  257. Severe neck pain
  258. Being off balance
  259. Unusual behavior. Loss of short term memory. Fatigue. The symptoms were split in time: headaches 2-4 months, maybe longer before diagnosis; vomitting 3 days before diagnosis; strange behavior 2-3 weeks before diagnosis. Fatigue 5-6 months prior.
  260. I had no real symptoms. No more headaches than the average person.
  261. disorientaiom,loss of semse of time
  262. tremors
  263. I seemed that my brain just stopped functioning and I have never determined how long this lasted.
  264. Behavior changed. Became unaccountably judgemental and uncharacteristically cruel five years before diagnosis. There were flu-like symptoms for a few months before diagnosis, and along with this, he was weak and foggy-minded. A year before, he looked pale and weak.
  265. not being able to concrete
  266. handwriting was shaky swallowing problems balance problems
  267. A slight hand tremor and a drooping eyelid were the symptoms that lead to diagnosis. Headaches, although recognized as having occured, were not frequent enough to warrant concern.
  268. Imbalance of the environment,losing balance. There were some cognitive changes despite a high IQ such as a dyslexive problem. I was told it was stress, anxiety. Certain noise pitches made me feel that felt I could lose my balance from. Problems with crowds after being on stage for years and in crowds of hundreds of people. Movement of the environment such as a escalator was a problem to naviagate the footing.
  269. frequent bloody noses for about 2 years before dx. stopped after resection. dr. denies this as symptom.
  270. slurred speech
  271. dizziness
  272. my nausea/vomitting and strongest headaches were in the am and by early afternoon they would go away. it looked like "morning sickness". the symptoms increased in frequency and intensity over about 1 1/2 years befor i went to a new doc and he sent me to a neurologist and an mri was ordered. this was in 1991.
  273. I was first diagnosed with having anxiety / panic attacks. The left side of my body would go numb and tingle. After my first MRI, they discovered I was experiencing seizers NOT anxiety attacks.
  274. Looking back on this, my husband had twitching feet at night when he slept and snored horribly. After his surgery he had neither one.
  275. Precious puberty, and other horomal issues
  276. Yes, the symptoms that caused me to ask for a CAT scan were swelling & numbness on one side of my face. This happened one weekend & I asked the dr. on call to schedule me a CAT scan. My family dr. did not suspect a tumor until the radiologist saw it (plum size) on my CAT scan & immediately sent me & the film to his office. He sent me to a neurologist who put me in the hospital on an IV for steriods and scheduled me for surgery, which I had after a 2nd opinion the next week. -------------------------------------The "strange" feeling in my head was more of a spacy, disconnected feeling lasting only a few moments which came and went over several weeks. The vision problem was like occasional spots or floaters that come & go. My family dr. thought it was maybe a blood pressure problem, but my pressure was normal.
  277. off balance, frequently dropping things and falling.
  278. It wasn't dx until the day I had surgery. the tumor had exploded and caused headache, paralysis, coma.
  279. The week to two weeks prior to diagnosis, a very disconnected feeling almost like being in dream, things felt far away. Dizziness , just not feeling well.
  280. LOSS OF SMELL. ANXIETY. SLURRED SPEECH.
  281. I had tingling in my hands and feet. I also had problems with my short term memory.
  282. Hearing music (no one else heard)and very strong, scary feelings of daja vous (partial complex seizure) Felt my personality was changing
  283. Confused, fatigue
  284. Awoke on vacation out of breath, difficultly breathing, naseau, feeling really sick. Dizzy, not normal feeling. Continued sick and unsure until seizures.
  285. Ataxic gait
  286. Pre-seizure, I had trouble finding simple words. It was so bad I went to see a counsellor, and we thought it was due to anxiety. However, my life is fairly normal, not a lot of anxiety.
  287. NOT SYMPTOMATIC AT THIS TIME, FOUND DURING ROUTINE MRI FOR MONITORING OF NEUROFIBROMATOSIS
  288. dizziness, tireness
  289. fatigue heart palpatations anxiety (I had a grand mal while driving, taken to ER, CT scan done, diagnosed brain tumor at ER visit.)
  290. dizziness when turning head and lack of coordination of feet/legs when crossing a street (this happened once)
  291. incotinence, different behavior, poor handwriting
  292. ants marching up and down face was the first symptoms had symptoms first in 1992 then they went away. Nuero Dr. never diagnosed the problem at that time. until 1999 symptoms reappeared
  293. Fatigue
  294. Only symptom: grand mal seizure (leading to fall from horse and hospitalization which resulted in my diagnosis)
  295. uncoorination when previously coordinated, dizziness, disorientation, dropping things, falling
  296. Extreme fatigue
  297. hallucinations "DREAMS WHILE I WAS AWAKE"
  298. Firey vision at night Like you get by staring at the sun and then looking away.
  299. The only presenting symptoms in my husband were some disorientation and extreme short term memory loss. These came on suddenly (mri showed blocked ventricles).
  300. deja vu prickly sensation on arms seizures were brief, absence type
  301. Dizziness, almost a drunken feeling
  302. hormonal problems: periods stopped night sweats
  303. mood swings unintelligible speech (twice)
  304. I had some cognitive problems, for example, I tried to write a check and did not remember what to put on the different lines of the check.
  305. I had problems with organization, concentration, reading, finding words, short-term memory, although none of these led to the diagnosis. Even after seizures started, it took a few months before the tumor was diagnosed, because my seizure symptoms were not understood to be such.
  306. My doctor thought my speech sounded slurred, and that my gait was "off."
  307. yes, my husband (I was his caregiver) started complaining of his pinky finger and ring finger in his left hand haveing a tingling. then it went to a puslsating into his upper arm then 7 months later had a seizure
  308. I had swelling in my arms and legs.
  309. Definite personality change
  310. hallucinations during aphasic seizures
  311. Felt dizzy
  312. extreme exhaustion, loss of sense of smell, loss of emotions and inhibition, uninterested in caring for home, children & self,dizziness, despondent,
  313. problems staying focused, felt unmotivated like he lost his "drive"
  314. Overwhelming feeling of "something is definitely wrong with me", generally unable to go to work, difficulty driving, very sore shoulders, weak etc. When a small amount of alcohol was consumed, unable to walk at all, terrible unwell feeling, head pounding, nausea etc. (This is what my father experienced for 2 and a half months. Diagnosis was a long time coming... shameful treatment from a supposed neurologist.) ...from his caregiver
  315. bad memory
  316. off balance
  317. tiredness, depression
  318. Blurred vision
  319. hormonal problem that family practice doctor thought was early menopause, then within thirty days of being on PremPro, has horrid migraine, went to ER and ER doc ordered Cat-scan, which found 2.5 cm meningioma, nightsweats, diaphoretic, difficulty in handling pressure or tendency to "blow things out of proportion" to their importance (acting like one of the children had been killed when minor conflict occurred, according to husband, who states now he noticed that my personality had changed a bit before diagnosis and he attributed it to menopause symptoms... typical, lol), unexplained tiredness all the time, insomnia, weight gain
  320. dizziness.
  321. i had short term amnesia
  322. not being able to control one of my hands for a second or two
  323. I have a tightness, like a rubberband around my head & cold feelings
  324. leg pain, tingling and numbness in right hand in last 2 fingers and half of palm of hand and numbness and pain in right leg. For a long time I have had issues watching the TV if there is movement or light. I would feel as though something was rolling around in my head. It was like an elecical impulse that would make me feel strange and horrible. It is difficult to explain. Lately they are much more frequent and instead of one here and there I may have 4 or 5 one after the other and I have to close my eyes until they pass. It leaves me feeling as though it is a run up to something bigger and bad and scares the bejeebers out of me. The strange feeling in my head left me knowing "something" was not right, I just figured it was some type of electrical misfire and I lived with this for couple of years. Unsure why, but have vascular issues in legs mottling purple rash under skin, broken blood vessels not there before... My meningioma is located on the saggital sinus within the falx and is small. 1.6x 1.1. It was an incidental finding looking for possible MS...13 doctors later I did get diagnosed with Chronic Lyme disease. The M did grow aprox 4mm in 4 months last MRI. It was 1.2X1.1 I am told there should be no symptoms other than headaches.. If you have any info on this type of tumor in this area pls can you fwd to me? I was diagnosed with mild ensephalitis 3 times in the last 3 years without spinal tap. Almost a yearly occurence I was listed as possible west nile virus... The episodes would go in aprox 6 wks or so symptoms were headaches, neck pain, dizziness and were awful. ....thank you My e-mail is quicksale4u@aol.com Thanks, Carolyn
  325. no
  326. dizziness
  327. Dave did not have the symptoms of a tumor. Has never had a seizure but was being treated for a sinus infection that would not go away. black outs that are now called possible mini seizures.
  328. No symptoms--found due to an unrelated fall which caused a concussion--the rest they say "is history".
  329. (This is for my wife who passed away three years ago. I was her caregiver.) Difficulty walking. Very unstable. Disorientation.
  330. Lost the need to react in a timely manner. In last month before diagnosis, I was last for several appts and did not seemed concerned by the consequences.
  331. Disoriented.
  332. diminished hearing
  333. chirping noise in ear
  334. no balance--hydrocephalus, lose of some urinary control,all I wanted was to sleep, certain smells upset my stomach--bacon & onion frying for green beans, depression, sore neck
  335. tingly twitchy legs, and PS re last question - I am a GP, got diplopia, and I still had to insist on a scan!
  336. Weakness on right side especially when trying to use hand however not considered anything since am lefthanded.
  337. heard sound in ear (like bugs or blood moving around) ear aches
  338. Difficulty with balance,
  339. No
  340. neuro deficits (forgot how to write, and how to type, could not hold the car in lane when driving), made bizarre decisions on cases at work, and stopped paying my mortgage!
  341. coordination in left arm
  342. Bumping into walls on left side. Tumor is on the right side of brain.
  343. Sore eye. Eyes could not move from side to side.
  344. balance, head tilt, eye wouldn't move to outside right, personality changes
  345. continuous low-grade fever, hand tremors, exhaustion
  346. Sudden onset of hearing loss. No other symtoms.Ear Dr. sent me for MRI the radioligist felt that I had an Anurisom. I traveled to UVA to see a Dr. that treated my son for cavernoma of brain stem,that ruptured and caused tremendous swelling in his brain causing stroke like symtoms.Resection was preformed with success.Thank GOD... The Dr, said that I have two of the same kind of tumors but located in different parts of the brain. No action is to be taken unless symtoms start. I am a 45 yr old male.
  347. no
  348. No
  349. failure to thrive at 18months old she was diagnosed then after a cat scan showed a growth in the hypothalamus region
  350. Hearing loss
  351. Exhaustion (this was a major symptom that began many years prior to being diagnosed with the brain tumor - I was actually misdiagnosed with Fibromyalgia); difficulty swallowing; frequent coughing (particularly after swallowing something with difficulty), very little control over bladder or bowel movements (extremely dangerous to laugh; also, I wore very heavy pads to work or when going out just in case), dizziness, fell many times, very strange speaking (totally different words than what I wanted to say came out) and I lost my ability to write.
  352. Chest pains similiar to stroke or stroke like symptoms. Dizzyness and felt as if I was going to pass out. Head felt like jello at times.
  353. back shoulder leg arm chest pain muscles sore almost everywhere,groin area too ankle wrist
  354. funny feeling in left eye and numbness/tingling of left side face
  355. No
  356. cold and caugh exesively.
  357. Writing very small. Mother sees that it is very small, almost microscopic, but she can't change it. She sees that it is not the same style too, but still can't change the style. She laughs hysterically at things that are definately not funny and can't stop laughing. Restless legs throughout the night. Can't sleep. Moves excessively slow, says she must think about how to move her legs and hands for a long time before she can move, must think about the steps. Screams to care-givers that she can do it herself, and then feels very guilty that she has treated them this way. Greets acquaintances with "Hello, how are you? Glad you could come." But can't talk to closest of relatives, turns away. We are hurt, but feel it is a symptom of the tumor. She can sing perfectly with her Sweet Adeline friends who come to visit, even complicated harmony and rhythm, but can't talk to us. Paralysis on right side. Though we know she realizes she has a tumor and feels very badly that she is soon to die, she has never cried or teared up, though prior to brain tumor she was normally emotional and teared up when her feelings were hurt. Said things that didn't make sense. Had difficulty talking and making us understand what she needed.
  358. dizziness, recurrent earaches,pressure in head
  359. lethargy
  360. Lump near the top of me head.
  361. loss off hearing in right ear
  362. hallucinations,fingers touching the body
  363. memory problems confusion
  364. headaches when there was a pressure change. such as coughing, sneezing, laughing, and moving my bowels.
  365. very sore bones and joints
  366. Bell's Palsy and small epileptic fits
  367. can't walk straight strong dizzyness when lying down lost of balance
  368. paralyisis,swelling.motorskills,vertigo,chronic head pain,loss of mucle mass,personality changes,fatigue,stagger,fall down,unable to funtion without worsening all symptoms,memory loss,grandemals,bowel disfunction,digestive problems,and the list goes on.
  369. dizziness
  370. Weakness and deteriation of right side of body. Confused. Memory loss.
  371. focal seizures
  372. My tast changed, I feel like I'm always chewing on "tin foil".
  373. crawling sensation under my skin in my back and bad mood swings
  374. mood swings,galactorrhea,bleeding for over month and half,always feeling hot and sweating,tired,face breaking out
  375. behavioral; short-tempered; cognitive problems; chronic fatigue
  376. none double vision left eye rolls to the bridge of nose
  377. change in behavier, lost temper
  378. tiredness, depression, easly angred, upset
  379. change in personalty
  380. i have a problem Very heavy Pain in my right leg joints I don’t know it is tumor or what
  381. I was born with a tumor and had brain sugery when i was 4-6 months old
  382. dizzyness
  383. No
  384. tingling sensation on my ear
  385. Fainting
  386. was diagnoised with perimenopause....anger issues.....dizziness, bad sensations that something bad was going to happen as my kids said i was paranoid, trouble remembering how to spell simple words. Werid dreams. Frequent urination, could swear i heard voices when no one else did. Bright spot in front of me that looked like a clear ti died spot on a tshirt. spots in my eyes.....usually black spots. pain behind my right ear.Abdominal pain. Strange rashes
  387. general malaise easily tired.
  388. deplession and all over feeling that something is wrong
  389. slurred speech.
  390. zoning out- not able to focus on what people around me were saying
  391. Feeling dizzy and shaking a lot
  392. servere pain in both arms and legs mostly on right side
  393. I had a sinsus infection and figure it was that. My left arm gave away on me and I felt that my right face was feeling a little weird.
  394. I had a sinsus infection and figure it was that. My left arm gave away on me and I felt that my right face was feeling a little weird.
  395. dizziness, extreme thirst and urination, fatigue
  396. arm spasam
  397. lightheaded, passing out, irritable, high blood pressure, loss of temper
  398. Tinnitus, balance problem worse when eyes closed or in the dark.
  399. neckaches
  400. dizziness
  401. vertigo
  402. Bulging eye pain. Constant tearing of right eye.
  403. "Sizzling" or "squish squish" noises in my head and neck for 4 years, I assumed it was sinus trouble, constant sinus headache, not improved by sinus surgery, breast milk and numbness of limbs resulted in diagnosis of grade 2 glioma, right frontal lobe near motor cortex
  404. alot of pressure and throbing pain
  405. I could hear a sound inside my head that sounded like rushing water. Loss of fine motor and coordination. Drowsyness.
  406. problems walking
  407. First I felt tingling on the left side of my face. Upon touching it I noticed it was numb. Then five minutes later my left fingers would not move.
  408. numbness, burning sensation, crawling feeling
  409. Flat affect Loss of concentration Fatigue Overall weakness Emotional....cry and laugh at same time
  410. dizziness
  411. hot/cold flashes short term memory loss, hemiparalysis
  412. down my right side there is a odd prickling and sensations, and my taste buds on my tongue have change how they taste things, I've lost some fine motor control in my right hand and arm. and I am having a pain in my left ear in one spot that I have to numb other wise it drives me crazy, and my right leg drag a little
  413. Balance issues Speaking gibberish
  414. Pins and needles feeling in my arms, legs, and head. Dizziness... vision problems such as grey spots, bright white spots, and seeing an aura around objects.
  415. loss of hearing fainting
  416. sudden and strong pain in arm and leg .heartbeating problems.
  417. Forgetfulness - drove around one night for 40 mins because I had forgoten where my sister lived, despite having visited her thousands of times.
  418. strobe like zig-zag lines, sometines saw "halos" would go partially blind for a few minutes then everything would come back into focus but very disoriented. i also had an I don't care attitude
  419. Total loss of apetite leading to severe weight loss, ocular auras of many types, vertigo, pressure in my head, sharp pain behind my right eye. Right frontal lobe tumor.
  420. Confused mentally Low patience / tolerance Vertigo like symptoms
  421. looks like a mild stroke down right side of body dropped face speach problem room spins when open eyes get spasms in tongue and face when lift right arm
  422. confusion
  423. Memory loss
  424. Vertigo - which promtped me to insist on a cat scan; however, doctor advised a MRI. Only trying to find the cause of the "Bad" vertigo experiencing at the time and trying to cover all my bases with test. As a result, the "M" was located which the Neuro stated the vertigo was in no relation to the tumor, just a fluk that it was located at that time. Did not notice any symptoms for the tumor.
  425. dizziness , fainting and feeling faint, spacing out for hours at a time
  426. emotional problems, I couldn't function.
  427. fainting
  428. a big bump growing on my forehead
  429. Fits of anger, personality changes, loss of interest in most things
  430. Anxiety and mood swings
  431. I have hearing problems. I also hear this dounf inside my ear
  432. feelings of aggresive behaviour
  433. Numbness that started in my fingers and gradually went up my arm to my face
  434. Numbness that started in my fingers and gradually went up my arm to my face
  435. Not able to speak for about 10 seconds
  436. large lump on the back of my neck at the top of my spine
  437. walking like I was drunk even though I wasn't; left side of my neck ached; random chills, just didn't feel good (like the begininings of a cold), studdered at the end (before surguery), pounding sounds in my ears (drumming would come and go)
  438. slight slur in my speech
  439. HEAVY SWEATING
  440. no
  441. no
  442. I had nystagmus.
  443. problems sleeping
  444. Balance problems.
  445. weakneww
  446. swelling in my back. fluid on my spain. A knot on the back of my head that has been there for 2 years.
  447. numb legs
  448. yes eye pain
  449. unusual weight loss
  450. Almost an out of body experience where there was talking in my head that I could not control.
  451. impulsive behavior, focus on trivial matters slowly getting angrier and angrier-then the matter is out of proportion/anger out of control....suspect these were small seizures or symptoms of one coming-sometimes in the form of a daydream like stare-only a minute or so. Severe heart palpitations...Feeling of being in a "fog"...trouble sleeping, exhausted, physical activity would bring on dizzy feeling-had dizzy days, and no dizzy days-heart palpitations got so bad he had 3 heart monitors put on at different times-abnormal rhythm all they could find....short term memory problems.Had 3 negative brain MRI "s before the 3.3 cm and 1.1cm brain tumors were finally found. Wife of patient is participating in survey-
  452. dizzy, fever
  453. I get dizzy ever time i stand up
  454. Trouble writing and spelling words.
  455. I had an episode of central vision loss in both eyes - my doctor ordered CT scan and the tumor was found - the vision loss was un-related to the tumour and the vision loss has never happened again.
  456. frogetfulness and clumbsyness
  457. dizziness
  458. severe vertigo
  459. Did not know what day it was and where I was going
  460. Personality change
  461. problems with hearing
  462. no
  463. pressure in my eyes.
  464. fainting very weak
  465. personality changed, couldn't organize anything anymore, couldn't figure out how to complete simple tasks, exhausted
  466. nope
  467. dizzyness,feeling as if my head is hollow
  468. my left side of my head was completely numb, i was blind in my left eye and deaf in my left ear.
  469. My face gets numb or the right part of my head also arms, leg, hands, feet, back.
  470. Mood&patients issues, lack of sexual desires, dizziness, tingling in extremities(left pinky finger and small toe), klutziness(falls),fatigue
  471. head clamps, the feeling of not enough 02 in my head.
  472. smell of metallic or toxic odors. ringing in ears and pain in ears. Dry throat and lump back neck pain continously down to lower spine. Sharp pain in head, itching of skin all over, dry eyes, gums in mouth ache. pains in stomach and around hear area (back).
  473. The tumor was on the left, and most of my symptoms occured on the right side of my body only. I lost a lot of feeling in my right arm and the right side of my face. Sometimes a pain would shoot down my right arm, and my arm would suddenly feel extremely heavy and almost numb. One time it was almost completely paralyzed. I also had myoclonus; at least 40 jerks a day.
  474. feeling dizzy
  475. floaters of the eyes
  476. fainting , feeling disconnected,
  477. pressure
  478. problems remembering what i was talking about during a conversation
  479. falling,bumping into things confusion anxiety weird behavior exhausted hard to swallow high blood pressure dropping things avoided people
  480. Extraordinarily tired
  481. Pain in the neck Flu like symptoms low tolerance to alcohol Two beers cause illness)
  482. strange waves of sensation up and down my left side
  483. Head hurt when I was shampooing it. My golf game, long drives impossible. WHile skiing my turns on one side weak. Felt pressure pushing on one side of my heads. Lost sight, came back as double vision, seen lines
  484. fatige,lips sometimes seem numb,bomp behind ear
  485. I had a cramping feeling in my left cheek it felt like a charley horse does when you are in bed in your calf at night sudden and cramping then my face swelled out on that side of my face within minutes. Like a lot of women I took an aspirin in case of stroke or something thought not much of it and put an ice pack on it rested. Later they thought it was a blocked saliva gland a ear nose and throat ended up doing a cat scan with dye and found the left frontal lobe tumor.
  486. I ate normal and lost weight??? Only 10 pounds, but I haven't weighed that less since grade school. I had no seizures and it was baseball size meningioma! I was always tired and forgetful.I woke up enough to go to work and eat. I slept the rest of the time.
  487. pain in neck
  488. head ache that just half of my head and i felt the heart beat in my head
  489. numbness in my legs,feet,arms,mouth, tongue, anus,and tingling in my face. pressure when I stand
  490. I was pregant at the time and thought the symptoms were caused by that. My nose had a sudden burning and a itch that would not go away. This began while i was in labor
  491. none
  492. bells palsy loss of memory feeling very tierd all the time
  493. migrain
  494. Tired all the time and chronic pain in my shoulders for 12 years to the point of haveing to take Percocet for pain.
  495. vertex headache episodically, some time aching in tample of the head
  496. neurogenic bladder
  497. vertigo, jerking while sleeping, leg cramps, sudden heat flushes, blurry vision, forgetful,
  498. constant twitch in my neck
  499. no
  500. very smelly discharge from the nose very dizzy when moving
  501. diahera
  502. watery in ear(yellow colour) and bleeding in nose
  503. balance & coordination vision inability to write
  504. Pain in my neck that gpoes through my head nick and ear
  505. pain on the middle of the head only on skin and burning sensation
  506. double vision, weakness on my left side. Loss of equalibrium headaches. feeling like my ears are clogged. I thought it was a light stroke but the doctor thinks it is a tumor
  507. Loss of taste, Dizzy spells for 10 seconds around three times a day.
  508. numb sensation on my forehead. this was later diagnosed as trigeminal neuralgia.
  509. partial numbness to the right side of my face
  510. temporary loss in memory.Feeling of stupidness.
  511. sleep behavior/emotional anxiety
  512. i also blacked- out everytime i got up and i couldn't concentrate
  513. hearing, loss of time
  514. My face twitches.
  515. dizzines
  516. no
  517. No
  518. NIGHTMARES repetitive/crazy thoughts hearing/ear problems loss of color vision in one eye Anxiety lacking appetite Paranoia
  519. changes in mood,tremors in the hands, double vision, parcial peripheral blindness
  520. balance problems, confusion, problems swollening food and liquids
  521. bump on fore head
  522. deja vu
  523. seizure or stroke...not sure...difficulty breathing, loss of speech, memory, intracranial pressure...i have a cavernoma posterior, between the ventricles...splenium of the corpus callosum....eyelid started drooping a couple of days before hand
  524. Dizzy spells (vertigo), motion sickness
  525. did not smell for 4 years. sinus infections every spring. taste loss of.
  526. DIZZINESS
  527. bad eye pain.
  528. personality changes
  529. behavioral changes like childish, crying at every dislike words or talking,
  530. Dizziness
  531. Allergies Dizziness Trouble with swallowing, digesting and excretion Loss of reality (short lived) Hyperaccusive hearing causing sound induced seizures
  532. loss of hearing sinus proble s
  533. syncope feeling of passing out
  534. When I had the seizures I couldn't control my arm, which would involuntarily raise to the back of my head.
  535. strange mutterings of no meaning
  536. abdominal issues, menstural issues, bursts of anger and then fatigue following in the next day or two
  537. Blackeds below the high ,headace & giddiness offen.
  538. Very clear is I felt going to fell down from sitting down
  539. loss of memory
  540. serious fatigue and fainting
  541. Pins and needles on many parts of left side of my body (hand, shoulder, cheek, foot...)
  542. memory loss repeating words blanking out during talking lack of concentration
  543. sleepiness all the time
  544. ringing in ears
  545. Anger, and anxiety
  546. Hi Yes I did have other symptoms the one that was the worst was the metalic taste and the taste of those black hard ball candies
  547. balance speach memory fatigue
  548. Grand Maul aeizure lead me to ER& then scans revealed tumor. No major symptoms beside that. It was golf ball size upon its removal.Of course I stroked during removal & am now left sidedless & another tumor is growing in the general area as the other one. I just need to get it removed & reclaim my once active body back from the stroke. Any suggestions would be great. email rghtstuff2@charter.net
  549. bleeding
  550. jaw hurting,while having a serve headaches
  551. numb arm not able to speak This was my 2nd brain tumor, so I specified to I have a previous brain tumor 19 yrs ago, so they immediately had MRI done
  552. passing out
  553. Hearing- a buzzing in my ears is what led me to an ear specialist, who tested and then ordered scan and discovered tumor. the tumor caused hydrocephalis, which caused the symptoms. he ear
  554. left eye twitch patches of hair loss
  555. noes bleeding, forgetting things
  556. Numbness of the left face.
  557. not being able to lie backward dizziness and walking off a strait line overall bad and strange feeling
  558. falling over lack of balance
  559. numbness facial, thought I was having a stroke
  560. extreme headaches and migranes all the time especially in the morning. extreme head shakes that I can't control. Nobody sees the head shake but I feel it. My neck is so sore from shaking too much. My ears ache and their are always lots lots of pressure. My ears are clean of wax. I have lots of dizziness.
  561. numbness in my face, nose, tiredness, forgetfulness,
  562. Black outs and falling.
  563. fatigue, ring headache, sense of pressure in head, shaking in hands, slight tremors, nose bleeds in left nostril
  564. cold and hot sensations in head feelings of loosing my mind
  565. I had a strong feeling that I had some sort of brain problem. Also, my year old German Shepherd female would become very protective of me about a moment prior to any of my seizures.
  566. BALANCE.MEMORY
  567. dizzy
  568. feeling of deja vu and a funny feeling in the pit of my stomach. didn't go to er till seizure so last 2 questions i really can't answer.
  569. was told I had a lisp when talking
  570. equilibrium
  571. When tired,loose of balance i complained of hairloss,i combt my hair and every time i shed a lot of hair
  572. Silver sparklies in the brain
  573. no
  574. less apetite, left side eyesite is erasing
  575. PROBLEMS WITH EQUILIBRIUM STOP MENSTRUATING DIFFICULTY VOIDING
  576. lost the ability to use my right hand for typing and i couldnt figure out what fingers went where i am usually a 60 wpm typist
  577. just a little pain on back side of ear
  578. sex craving
  579. headaches on my left side of my head
  580. headaches on my left side of my head, ringing in my ears, trouble swollowing, sore throat
  581. continuous head ache
  582. memory lost
  583. disorientation, incontnence,unusual laugh docile
  584. eye seperation,
  585. my hearing is really bad
  586. vertigo
  587. Dizziness when looking up
  588. stomach problems, viral menegitious
  589. No, not really.
  590. she had no symptoms prior
  591. flu symptoms, stiff painful neck i couldn't hold my head up for more than 10 minutes
  592. nose bleed
  593. no patience, tolerance, bad concentration, right words fail me,
  594. dizziness, problems with thinking
  595. confusion
  596. hearing loss
  597. SWOLLEN OPTICAL NERVES
  598. forgeting of things, name of person;
  599. dizziness, itchy eyes,tired
  600. breast cacer[ inflamatory cancer]
  601. Numbness on left side
  602. Partial paralysis in the left side of my body, a numbness or tingling sensation in my left arm, limited motor skills on my left side
  603. yes dizzyness
  604. blurred on and off eye vision. somestimes missinterpret objects and distance even some events. confusion.
  605. short term memory loss,stuttering, severe "brain attacks", loss of balance, massive confusion, unbearable migraines
  606. Flashing lights, loss of appretite, weight loss, fatigued & abnormal perimetry test
  607. Other symptoms included debilitating fatigue, balance problems, dizziness, vertigo & problems with mathematical calculations, & hiccupping. I was misdiagnosed with chronic fatigue syndrome (myalgic encephalitis), and then benign positional vertigo for almost 2.5 years until I was hospitalised unable to keep food or drink down, until my sister insisted on a MRI scan revealing the 4th ventricular ependymoma.
  608. loads- sporadic numb spots around the body, sometimes with pain or coldness; the headaches which suck-- feels like my brain is pushing its way past the skull. Dropping things. Sensation like a thousand bubbles exploding in my head. And with musical tones, especially bass, it feels as though the tumour pulses in exactly the same movement as the speaker's membrane. It's a 20 mm posterior falx meningioma on a CT scan with 2 unidentiified similar objects about 3 centimetres from it-- one on the left hemisphere side and the other on the right hemisphere side (can't wait til an MRI scan clarifies these). ledolphinquill@y7mail.com if anyone's interested.
  609. n0
  610. Pressure on the left side of the head
  611. seeing shadows, and my planning abilities
  612. Pain in the crown of my head and pressure
  613. Paralysis on right side of body. Symptomatic tumor was on left frontal lobe.
  614. leg pain severe
  615. depression and anxiety
  616. none .i used to feel lazy during day time only if i am alone but in a group, i had the capacity to doing work of 4 people.
  617. muscle twitching, ringing in ears
  618. Visuals things that others do not see. Loss of balance. Memory problems.
  619. both eyes burning red
  620. anxiaty depression confusion
  621. I have blood outed in Ears and Nose. Headaches,
  622. None
  623. sleeping up to 30 hrs at a time
  624. passed out
  625. dizzy, disoriented
  626. feels light right side contracts and tightens such as spasms
  627. Hands in motion feel on fire
  628. partial memory loss
  629. strange taste
  630. half protion of head acute paining
  631. no
  632. ringing in the left ear
  633. dizzy
  634. lost my hearing, eyes twitching
  635. lost my hearing, eyes twitching
  636. pain in the back of the neck
  637. Dizziness
  638. pain over right eye
  639. peralsis
  640. Elevated prolactin level.Complete loss of libido.
  641. I could not write. I could see what the words looked like, but I couldn't put them on paper.
  642. Bad typing and writing
  643. Numbness in left extremities, can smell great at times, can't at others at all. Feel dyslexic or something, turn things around constantly.
  644. numbness of leg
  645. Sharp shooting pains in my head. My head is tingely all the time. Dizzyness cant concentrate minor seizures. Pain in left side of head earachs like ear infection
  646. forgetfullness, aggressive behavior, poor judgement/reasoning, confusion
  647. ringing right ear needles and pinch in right side of face numbness in arm numbness in neck numbness on cheek
  648. no
  649. (man) loss of libido, critically low levels of testosterone, High PSA levels, high Blood Pressure (150/98) and much more
  650. Dizziness, constant pain in my head.
  651. Numbness and tingling in my arms and legs
  652. Numbness and tingling in my arms and legs and I've started having strokes
  653. numbness on my entire right side from top of head to toes.
  654. zoning out while driving
  655. Pressure in head Light headed not spinning more like rocking back and forth or sometimes floating.
  656. flashing lights eye Dr found two cyst behind each eye.
  657. I am deeply tuoehcd as I read your blogs. Thank you for opening your heart to share the triumphs and struggles you and your family have endured.
  658. I had a nape ache eyes aching and my head
  659. I get very tired, very quickly. I would (and still at times) fall asleep for 15 minutes or 15 hours, I can never tell.
  660. Fluid secreting from my mammory glands. Prolactin. Emotional/Cognitive problems Anxiety Angorphobia The MRI showed two tumors one is on my Pituatary Gland. The other is inbetween my brain and the protective lining of the brain. So my symptoms I list might be a combination of symptoms attibuted. However, I believe primarily to the pituatary gland tumor.
  661. none
  662. no
  663. no
  664. no
  665. Stuttering
  666. Hiccups, Visual disturbances, Hallucinations, Joint pain
  667. Dizziness when standing / constant ringing in my ears
  668. broken blood vessels hives kidney infections
  669. none
  670. lose balance and fall down.same time faint for 10 secons
  671. Sensitive to sounds and smells. Developed floaters in vision but they say it's not related to my tumor due to where it was located. Memory problems, sleeplessness, body aches & depression.
  672. Balance loss, tired
  673. left eye pain along with headaches
  674. Could not follow directions, got lost in familiar places
  675. Hearing loss
  676. unable to speak clearly
  677. speech problems, thinking problems, walking and balance issues, hearing problems, and "seeing smoke filled rooms" when there isnt any smoke. memory problems.sleep problems- either not enough, or sleeping all night and all day too.
  678. Memory problems.
  679. Memory problems & mood changes, becoming very angry & snappy with people. Oddly could contain the mood swings more at work, less so at home. Also some tingling on right side of head/face for a couple of years, but I have no idea if this is related to my brain tumour. I saw general practitioner after several weeks of persistant headache, fatigue, & "feeling off". I'd had flu a couple of months earlier and was epxecting to be told I was post viral, but the headaches scared me, in terms of frequency & being mostly in the morning. He gave me a nasal spray for sinusitis.
  680. Changes in saliva. Excessive to extreme dry mouth
  681. Bleeding out of left nostril only floaters in left eye onlt
  682. hear my heart beat on my pillow, feel my pulse on my head, and numbness on my head and tingleling too, specially if I drink Alcohol, and depression has been very intense
  683. Calf muscle pain/tingling
  684. The same
  685. Head shocks when I turn my head or my gaze, and pain down my face
  686. yes like tingiling and pressure in back ov head
  687. unexpected thinking,hands are shivering
  688. Very light headed... zone out countiously
  689. Have UTI make very back pain headaches 2week ago but still not work the med:(
  690. hair loss
  691. i actually had a lump bulging so much i could feel it.my head felt like it was so pressurized..like someone was squeezing it together. and i had Constant stuffed up nose. a bit of nausea
  692. Short term memory loss. Lost the use of right side and started falling. (suspected stroke)
  693. Hair loss
  694. Taste I be been having a taste like metal
  695. Dizziness and passing out being clumsy
  696. severe pressure on left side of face and forehead and left ear.
  697. No
  698. my eyes hurts,numness,
  699. Issues swallowing nystagmus Balance Vertigo
  700. Fatigue, exhaustion, tiredness after full sleep
  701. Fatigue, exhaustion, tiredness after full sleep
  702. Rushing noise in one ear. The ground was moving under my feet occasionally. My eyes - double vision? Very loud tinnitus. One stuck focussing far away and one near
  703. Passing out
  704. Forgetful, do the wrong thing, pick up the wrong thing. Short memory.
  705. Weight gain,hypertension,diabetes,irregular periods,chronic lung disorder,vertigo,migraine
  706. Hair loss
  707. Nosebleed swollen glands
  708. lump on left side back of head temporary ringing in right ear temporary loss of hearing in right ear
  709. no
  710. I had other symptoms, but the seizures got the doctor's attention. Prior to having seizures I had migraine headaches and memory problems which seemed to be increasing.
  711. Fatique
  712. i had a fall and walk began to deline
  713. Several episodes of Deja vu in quick succession initially (with a major rush of nausea), tremor in left hand, exhaustion, forgetfulness/memory not great + anomic aphasia (sometimes could only remember the first letter was), floaters, collapsed twice (on the same night) couple of weeks prior to scan, cottonwool mouth/swollen under left side of tongue sometimes on waking up, tingling above mouth on left hand side, anaemia and sometimes now there's a whooshing feeling in the region of the tumour [OLIGO IN RIGHT TEMPORAL LOBE]
  714. Balance issues Fatigue Fainting
  715. strange sounds ears buzzing...
  716. hearing loss in right ear
  717. Always tired
  718. head hurts worse when moved, urinaryin ontinence, confusion, lack of focus, easily distracted
  719. sinus & ear pain, sleepwalking, insomnia, hair loss, loss of balance, loss of depth perception, extreme apathy,laughing inappropriately, fatigue, hearing loss in one ear, personality & behavioral changes.
  720. Pain on the top of my head. Only relief was applying manual pressure to the area
  721. dizziness
  722. I suffer with tremors also, staggered walk and slurred speech, memroy loss
  723. incontinence,vertigo,unconsicousness
  724. no
  725. eye droopy
  726. increase in body temperature
  727. I'm primary carer of my 73 yr old mum. Personality changes....became easily aggitated, aloof, overly confident, blarantly lying, unconcerned with consequences, detached from feelings, inflexible & unreasonable - complete opposite to her 'normal' personality. Dramatic decline in hearing & ability to sequencing simple tasks. Unable to estimate time or day of week, every day was a Friday for example.
  728. Tingling on right side of the head when having a hot flash and when I lay on my right side of my head
  729. Fatigue
  730. Right side vertigo
  731. Disorientation
  732. Eyes twitching constantly for three days. And abcess on my right cheek near my chin.
  733. i was always very tired and would fall asleep even when talking. my speech was slurred and my vision was blurred and sometimes it was double in my left eye.
  734. Tinnitus, loss of balance/coordination and the right side of my face had gone numb. Ear felt full and my eye felt pressure, like someone was pressing up under it.
  735. protruding coccyx, vertigo & balancing problem, severe backache, less control on urination, frequently shooting o f heartbeat
  736. no
  737. Short term memory loss severe - unable to perform job duties, loss of concentration
  738. Tripped and fell over my left foot several times, sensitivity to sunlight, double vision, seeing sparkles, body aches, joint pain
  739. lower back pain
  740. Ate a lot, gained weight
  741. No
  742. Dizziness, feeling faint-like I'm gonna collpase
  743. tickle in throat , cough thick sputum found nothing with cat scan
  744. Yes, mobility issues, falling more ....
  745. No
  746. pressure in head
  747. Presented stroke symptoms. Had not felt "right" for about 6 months prior. Some memory loss. Trouble reading and writing.
  748. Pain in my mouth, teeth and ears
  749. head tilt, unsteady on feet, tiredness, weight loss
  750. loss of memory
  751. muscle weakness
  752. Facial paralysis (initially suspected Bell's Palsy)
  753. clumbsy face numb on rt side hiccups
  754. equalibrium
  755. no
  756. brain and eye pain is vein and artery strain due to commpresion by rope and its looks like hang on by rope till death
  757. brain and eye pain is vein and artery strain due to commpresion by rope and its looks like hang on by rope till death
  758. Confusion, especially regarding numbers and calculations. The only reason they knew I had the glioma was that I had lost vision in one eye 5 years before, and couldn't figure out why. They didn't find the cause of the optic nerve damage, but they found the glioma.
  759. Bloody nose
  760. confussion dificulty thinking straight
  761. Very tired & needed to sleep a lot; menstrual problems & pain down my back
  762. Ear aches feels full and like something in them all the time
  763. constipation
  764. anger, passing out, confusion
  765. Hard to breathe sometimes,I felt like I was in STUPID mode, flushed or warm sensation when I drank water or moved too much,left eye hard to open most mornings, left ear itches, swallowing food sometimes makes me choke,weight gain n loss(up n down),I hiccup alot now, almost same time everyday,always tired, I do get a window of not being tired but not much, my left upper leg weird pain (ghostlike)
  766. Hearing strange noises in ears.
  767. No
  768. sensation of room spinning, loss of balance, dizziness
  769. slightly elevated blood pressure (160/85), MRI showed old hemotoma in brain, no tumor. BP immediately controlled and sensation in hands originally notices when typing immediately went away. Small tumor only found after several months of tests and another MRI after hemotoma dissipated. Neurological tests did not identify anything and no other symptoms appeared.
  770. hearing loss
  771. knife stabbing pains in my head where lesions are located. unable to walk unassisted. now having to use wheelchair. falls. i freeze, people have to help me.
  772. nose bleeds, poor coordination, swallowing problems, sensitive hearing
  773. seizure included numbness on right side of body, speech slurred for about 15 minutes
  774. SEVERE PAIN ON THE LEFT SIDE OF MY HEAD FOR WEEKS THOUGHT IT HAS BEEN MIGRAINES SEZURES GETTING WORSE
  775. twitch in left eye and left side of face
  776. upper eyelid twitch of and on all day long lasting 10-60 seconds about 20 times an hour
  777. EXTREMELY tire since I could only stay awake for 4 hours at a time and then had to sleep for 3 hours. Clumsiness- to the infinity degree
  778. right side the neck hs pain
  779. I became really rude, yelling at people and locking myself inside my office. I sometimes couldn't remember how i got to work.
  780. Problems with speech Strange Gait Difficulty walking Over salivating during the day and at night. Problems saying things and finishing sentences.
  781. Leukemia (CLL)
  782. no
  783. blood vomiting
  784. Problems while driving not remembering where I'm going or what I did while driving
  785. The top of my feet felt like they were burning.
  786. Fatigue
  787. Ear pain numbness in face and right side of mouth
  788. I had so many symptoms that led me to believe that I had cancer and I did.
  789. neck injury caused by the brain tumor compromising part of the spine.
  790. blackouts in vision, not passing out, just complete darkness
  791. cervical nerve pain
  792. numbness on the right side of the face,tingling sensation on my tongue
  793. Loss of hearing in rihht ear!
  794. no
  795. Mild numbness and tingling of the left hand fingers tips
  796. test
  797. CONSTANT HEAD NOISE I Thought the ringing in my head was norm-Had it most my life and thought everone had it. Swallowing, and pains/feet&legs&face Most Recent pains in Neck Swelling in Neck with strange lump behind my neck So THEY SAID I WORK I HAVE DEVELOPED COGNITIVE ISSUES..Humm oh did I mention the ears RINGING
  798. Dizziness
  799. At age less than 2, 1st DX was nystagmus. We were only sure of loss of vision when she turned into a door breaking her arm.
  800. ear sore nose sore and head sore
  801. Severe personality changes. Extreme mood swings.
  802. sometimes a feeling of almost head explosion, no appetite
  803. My hand shakes several times a day can last anywhere from 3 to 30 seconds, fatigue, strange taste in my mouth, neck stiffness, tingling in arm and leg,
  804. no
  805. severe headache with right eye pain along with the ear pain
  806. Odd behavior, loss of concentration, easily distracted, sleeping too much
  807. Attention deficit hyper activity disorder
  808. nape of neck ache deep ear canal ache
  809. nape of neck ache deep ear canal ache
  810. The first two episodes I experienced were room spinning followed by weakness in my right side, after this focal seizures in my right leg.
  811. Hearing pulse in ear on same side as tumor; vertigo
  812. tingling feeling in lips and tongue and cold sensation in head
  813. while sleeping i feel like pressure on every nerve from brain inner part and bursting of my head for a while, if all me knowing that this happening i could not able to wake up or shake my body hands, plz help me with this
  814. Dizziness, loss of balance
  815. Can feel right side off my hand and two figures .pain in my shoulder also got a cyst inside my nose got to have a byoisp and ct scan blooded test and a hearing test also got a hole inside my nose where the cyst is
  816. dizziness
  817. i cant focus!
  818. NUMB ON LEFT SIDE OF BODY, LOST OF TASTE BUDS, BREATHING DIFFICULY, POUNDING HEART FEELING
  819. i saw a flickering light and felt like i was losing my balance
  820. saw sparking lights or things that look like they were floating around this went on for 12 yrs they kapt telling me it was my sinusis i had mris done then and they said they didn't see anything wrong then
  821. ringing in both ears- was originally thought to be acoustic neuroma until surgery for removal
  822. Loss of hearing Balance
  823. Pain above the left eye, sway while standing still.
  824. Sore throats, pain in ears, head and chest facial pain.
  825. Paraesthesia to neck & face, drooping eye, tinnitus, fatigue and/or lethargy, lower back spasms, absences, occasional swallowing difficulties, weight loss which i cannot put back on, sinus trouble. Also have raynauds which i don't know if it is associated to the tumour.
  826. no
  827. Loss of balance Blackouts 2 seconds each
  828. No
  829. pressure on my brain,neck ,memory loss confused.
  830. Vertigo Off balance
  831. uncomfortable to lay on left side of head
  832. Nausea/Vomiting
  833. Wavy in my head
  834. Balance
  835. Balance
  836. tingling feeling in my hands and legs I'd feel really dizzy and weak sometimes
  837. Eyes twitching
    4. IF you had headaches right before your diagnosis, please describe what they felt like:
    1. No headaches except migraine with only aura - no pain.
    2. Mild mostly. Like wearing a too-tight hat. An 'ice cream' headache like when you eat something freezing. And mostly like a sinus headache. I really thought It was just a sinus infection. So, not very painful. More just annoying. Uncomfortable. You're next two questions ought to include an option for found by random coincidence.
    3. none
    4. back of head upon waking, the pain like the pain you get from a head injury. disappears within an hour of waking/getting up.
    5. Like someone was blowing up a balloon slowly inside my head. Pain pressure and low grade throbbing. Also had a hemorrhaging pituitary tumor (removed Sept 2011). The acoustic neuroma remains embedded in my facial and hearing nerves.
    6. dull throbbing,sharp quick
    7. Pounding sensation like nothing I have ever experienced
    8. some worse than others
    9. different spots around the head, it feels like something bursts inside with a burning/hot sensation
    10. aching headeach
    11. dull pressure on lower right side of my head (skull base). Constant with no easing 24/7. Dr could prod and poke my neck and it made no difference to the headache.
    12. Wierd and strange
    13. Felt like someone constantly hitting me in the back of my head every few seconds with a sledge hammer as hard as the can unbearable pain especially when vomiting
    14. I am deeply tehoucd as I read your blogs. Thank you for opening your heart to share the triumphs and struggles you and your family have endured.
    15. memory lost lost balance my ears everything its I see big black spotsmy head keep hurting and back to my head and the my headmy doctor hasn't diagnose me back I'm reading well seeing something at the web and it sounds like everything it sounds like I have one
    16. Serve pain on the left side of head
    17. On and off throbbing through out the day
    18. Hell sorry but only word to describe best how it felt. I was chasing tylenol and ibuprofen every two hours and it wasn't working.
    19. Stabbing throbbing pain
    20. On and off throbbing through out the day
    21. no
    22. no headaches
    23. Headaches in the morning for about 10 minutes at the front of my head
    24. I have headaches when laying on my right side that are so bad it feels like my ear drum is being punctured when I lift my head off my pillow. This started in 2007. Only symptom that I noticed.
    25. They felt different from other headaches I had. They didn't respond to medication. The actual pain might only last about a half an hour, but I always felt on the verge of a headache and would get them multiple times a day. Exercise would always bring one on.
    26. Like my brain was bounding and flopping around in there
    27. it was very painfull.
    28. tearfull strong pain
    29. had no headaches
    30. it feels like my brain is swelling with pain
    31. stabbing sharp pain
    32. It was a Headache like Ive never had before, nothing like a normal headache or a migraine
    33. not very often and they were typical and not in that area
    34. Just one day WHAM at the side of head,behind the ear. Went away and then WHAM again. Never had pain like that in my had before.
    35. minor headaches that increased every other day now being severe
    36. strong front of head aggrivated by certain head movement
    37. sever pain in head
    38. Migraine extending into my neck.
    39. bad
    40. very stressed and pointed in particular region
    41. sher pain in the frunt and in my face and like a tiging a lift side of my head
    42. tight feeling in my head, constant pain, pulsation on my temples, absolute agony, never went but got better at different times of the day and worse in morning and night
    43. throb in temple. various parts of the head would hurt. Not one certain spot.
    44. the top lrft side and my temple on the left side of my head would hurt very bad and it would cause me to get dizzy and vomit.
    45. Horrible pressure, sometimes like a brain freeze, headaches never go away but not always severe. My head hurts worse just to lay down, fix my hair, wear sun glasses, bend over and just to touch.
    46. Pounding so hard felt like my head was going to explode. Couldn't have any lights on or be in the light, had to have the room pitch black and it had to be very quiet. If not then it would hurt really badly and I'd start screaming and crying.
    47. right side like my head is ready to explode
    48. Serve headache uncontrollable
    49. They feel like burning skin
    50. like my head was going to blow off
    51. Would not go away, woke me up at night
    52. massive migrane
    53. no
    54. The headaches were mainly on weekends and I thought they were migraines which I had never previously experienced. I had severe pain in the bone above my right eye. Light made the pain worse and I often vomited which is why I thought they were migraines. It was when I mentioned I had double vision when looking to my right(which my optometrist had said (some years earlier) was just eye muscle weakening due to my age ... in my 40's !!) that my doctor sent me immediately for a CT scan
    55. FELT LIKE I HAD TORN MUSCLES INSIDE MY HEAD
    56. pain behind right eye, very painful
    57. Back of the brain
    58. Headache, complete head, steady and all the time, (caused me to get minimal sleep)
    59. very sharp pain, shooting either up from the neck to the forehead, or the other way around. Mostly the severity of the pain was at the base of the skull.
    60. My daughter was unable to describe them.
    61. can't remember
    62. Excruciating headache combined with vomiting for two full days prior to MRI and diagnosis.
    63. pressure
    64. worst pain i have ever felt
    65. migraines
    66. a needle going through my brain. thumping sounds
    67. Migraña with nausea
    68. pain and nummnes
    69. No headaches
    70. pounding,throbbing
    71. Like a very tight baseball cap or a migraine that just kept getting worse
    72. Excruciating-causing vomiting, distorted vision, feeling of pressure
    73. my son who had medulloblastoma, had severe pain along the forehead
    74. sharp and intermittent
    75. they were beyond migraines which I have a history of. I would get them twice a day(early morning and after lunch)It felt like my head was about to explode. The pain behind my eyes was excruciating.
    76. Thought they were sinus/allergy headaches.
    77. Slight headache upon awakening in the morning. Eased after being up for awhile . One week prior to diagnosis headache became more severe. Pain was in right eyebrow area. Gbm on right frontal lobe. Vomitted and went to ER was immediately diagnosed by CT scan.
    78. Blinding unbearable headaches, for some time mostly behind one eye and DX as cluster headaches, migraines,etc. Also headaches began in the back, right side of head. Constant pounding pain. Those continue to this day, 14 years later. the tumor was right frontal lobe. There has never been an explanation for the pain in the back of head.
    79. On a scale of 1 to 10, the pain was a 10+, lasting four days sometimes.
    80. rather intense head/neck ache (4th ventricular ependymoma) every morning - solved by taking 3 extra strength tylenol x 6 months
    81. My husband described these as terrible, aching headaches on the right side of his head (his tumor was in the right temporal lobe) and on top-front of his head. His usual remedy of Excedrin did not even touch them. He was prone to earaches on that side of his head and thought maybe he had a bad ear infection. He told the doctor about the headaches, but NOT about the other symptoms (dreamlike state, smells, etc.) He only complained about the headaches, so they gave him something for the "earaches". He did not recognize the focal seizures for what they were. When he finally told the doctor (and me!) about the other symptoms, the doctor immediately ordered an ultrasound of the carotid arteries (thinking maybe he was having TIAs) and an MRI.
    82. She had moderate headaches for a couple of months before her seizure, more late in the day. Tylenol would take care of it.
    83. pain and pressure in back of head from ear to ear; sometimes sharp pain left back side of head (which is tumor area)
    84. Extremely severe, like my head was about to explode, then nausea and vomiting.
    85. Pounding/Blinding headaches where only being in a dark place with meds helped.
    86. No different than headaches I had my entire life. Mostly when I was tired or overworked, in the back of my head.
    87. Intense migraine like headaches situated behind right eye socket
    88. Extremelly strong headaches
    89. They Felt like really strong Brain Freezes.
    90. i don't remember that my dad complained of any headaches before he was diagnosed.
    91. very painful couldnt move because the pain was so great
    92. Like a sinus headache
    93. i had severe headaches daily. it was progressively bad -- usually by noon the headache was so bad i'd have taken several extra strenghth tylenol. in the afternoon, i'd have to take a 2-3 hour nap. this went on for a couple years before my grand mal seizure; after which i was diagnosed with an oliodendroglioma.
    94. The patient described the headache as the worst in her life. She was accustomed to recurrent and severe sinus headaches, but the pre-diagnosis headache was totally debilitating.
    95. My son said his headaches were excruating. The pain was like no other headache he had ever had before and he had been experiencing migraines for several years.
    96. migrane
    97. Very intense headache, but quite short in duration. Like a migrane (sp) but much shorter. The Dr. first thought that these were migranes. Also during the headaches my blood pressure was very high and in general my bp was elevated. I was told later that these were likely seizures.
    98. headaches always started in the neck, thought they were from stress
    99. Pain in one side of haed that got worse with movement
    100. Frontal throbbingwith pain behind the eyes , nausea, vomiting...misdiagnosed as migraine headaches
    101. Back of neck. History of headaches for awhile. Lots of advil. On question 6, we were told a lesion, could be virus, testicular cancer, but BT was NOT mentioned until the following day after N/S viewed the scan. Diagnosis was made within 1 day.
    102. sharp.. not long lasting
    103. My daughter described the headaches as throbbing. They would happen in the middle of the night and felt different than any other headache in her life.
    104. * I had a grand mal seizure, was brought to the hospital unconscious, run thru CT and MRI and BT was discovered..No conversation took place
    105. I had pounding migraine-type headaches for 20 years before my diagnosis, but did not associate them with the tumor until they went away after the surgery.
    106. headache was excrutiating. Nothing I have ever felt before
    107. Right side of the head constant pain, on a scale of 1 to 10 - about an 8. These strarted about 5 years before diagnosis.
    108. Headaches would awaken me during the night. Had some headaches which occurred suddenly , sharp intense pain in the top of head associated with nausea. Headaches had nothing to do with being diagnosed. When I realized I could no longer work in the medical profession because of memory problems, I went to Rehab services. They referred me to a psychiatrist. He ordered the MRI which found the tumor.
    109. Don't know as my daughter was only 1 year old at time of diagnosis.
    110. A headache so bad like I have never experienced before.
    111. Several types. Screw type pain in temples and down behind the ear structure. Sharp stabbing lightening bolts in the side. Skull cap squezzing pain. Pain at back where head joins back bone.
    112. whole head throbbing pain, not localized
    113. general ache, throbbing
    114. Like a pole going through my right eye diagnoly exiting at the bas of my skull. Also a fullness in my right ear that felt like a wet finger was in my ear.
    115. Like you wanted to pull your head off!!!!
    116. Hurt in one spot (right temporal lobe) and were worse in the morning. Felt like head was going to explode
    117. Horrible headaches and lights made them worse...throwing up due to headache...
    118. Intense pressure headaches; initially diagnosed as a sinus infection. I said many times, somewhat jokingly, that it felt like "my skull was getting crushed." In fact, it was.
    119. terrible pain right behind the eyes that would not go away even with over the counter pain relief
    120. Severe with band like sensation with pain into shoulders and neck.
    121. I can't remember the headaches before the first tumor (1986), but headaches now can be very severe: a feeling of swelling from the inside out; a feeling like "just explode and get it over with".
    122. some headaches, no special characteristics
    123. Didn't have except when dehydrated
    124. Prgressively the headaches worsened to the point where I stayed in bed. Pain along backside of head, like a tightening vice. Had accompanying nausea/vomiting.
    125. No headaches whatsoever.
    126. Just an ordanary run of the mill headache in the back of the head, usually when tired. Not all of the time, maybe a few times a week for a few hours each time. Not unlike headaches I had my entire life.
    127. Yes, headaches right before the diagnosis! They were rated a 6 on a scale of 10. Never had headaches before- but, definitely were felt!
    128. intense indescribable pain
    129. Again, I don't know if these qualify as they have stopped since sx for hydrocephalus, but I woud have "visual" migraines that would last on average 45 minutes and rather than get a full blown migraine headache, I would feel somewhat dazed and exhausted once the auras stopped.
    130. Never had headaches!
    131. No abnormal headaches.
    132. I had migraine headaches most of my life, but then I started getting really severe headaches that the migraine medicine didn't help with. Severe, intense pain in the back of the head lasting for several days. Nausea & vomiting almost constant with them. I had never gone to the hospital before, but the first time Mine were this severe, I knew I should go, but I was in a strange town. This happened monthly, then they got closer & closer and lasted longer. I was taking Vicodin constantly trying to control the pain. When they got really bad during an ear infection, the doctor gave me a shot of Demerol and sent me for a CAT scan, which prompted an MRI which lead to surgery & chemo. My first doctor left the practice after I had seen her for several years with memory problems & the headaches. I saw another doctor in the same office when I got the ear infection and she sent me for tests right away.
    133. FEROCIOUS HEADACHES (AS LONG AS I CAN REMEMBER) SEEMED TO BE ACCOMPANIED BY A ? HEIGHTENED SENSE OF/AWARENESS OF LIGHT/SOUND, EVEN THE SOUND OF SOMEONE'S FOOTSTEPS WD AGGRAVATE THE PAIN
    134. VERY SEVERE - SCREAMING AND WRITHING IN PAIN
    135. like severe pressure in the back of the head. Only lasting 5 minutes maximum but extremely severe.
    136. slight headaches sort of in sinus area
    137. On a scale of 1 to 10, the pain was rated 11. The worst pain I ever exerienced in my life. Much worse than child birth.
    138. Pain at the base of skull on left side, moved up the head to behind the left eye, felt like sinus headache. Responded to sinus medication until just before diagnosis when nothing helped.
    139. The worst and ultimate headache just before diagnosis was a pain behind my eye which felt as if there was so much pressure my eye would fly out of the socket. Recurrent headaches were all in the sinus area. In the past I had headaches/pain from the back of my neck at the base of my head up towards the front of my forehead.
    140. squeezing pain at the back of my head worse than the worst migrain you could imagine. Went into SEVERE nausea by the 5th day.
    141. Like a vice grip in the back of my head and neck You may not want this input as I had the B.T. removed 11 years ago
    142. Violent migraines, auras --diagnosed as "premenopausal migraine," no treatment needed (5 years) one evening of vomiting, fainting, "maybe we should take a cat scan" then diagnosis (meningioma, right parietal lobe 7 centimeters) all above 6 years prior to diagnosis --including 3-4 visits to pc doctor, neurologist, gynecologist, othomologist
    143. headache felt like sinus headaches probably why they initially treated as such.
    144. Extreme headaches to the point of not being able to function properly.
    145. Like a hot iron going up through my nostril and into the right side of my head.
    146. No headaches prior
    147. Throbbing pain which reached a crescendo in about 30 seconds after a positional head change however minor
    148. sinus headaches that never went away - all around my eyes
    149. had an instant headache upon sneezing but lasted only a few minutes
    150. Very strong all over. Worse in the morning.
    151. pressure headaches, I could feel like a squirting going up in different places in my head......
    152. Migraines
    153. tight band being tightened around forehead, ice poker being driven into head
    154. pressure behind eyes
    155. He complained only of a dull headache. That, however, does not mean that he didn't have chronic headaches, nor does it mean that they couldn't have been excrutiating. As I've said, he did not want us to know that there was anything wrong, so he never complained.
    156. A constant pain in one spacific place (where the tumor was located). A sharp pain. It did NOT throb, but was consistant. When I shook my head, it felt like something was there. When I bent over, my head felt like it would explode.
    157. Pressure when standing up or bending down
    158. Horrible centrally located head pain
    159. whole head headache, not just one area. Constant, never fading pressure
    160. I've had migrains and sinus headaches all my life...they were alot like sinus headaches,with nausia from smells.
    161. I had headaches only slight ones on awakening most commonly if i took a nap. They would be often go away by them selves. Often just a little quesy with these headaches. Monster headaches with menses!!!!!
    162. the neurosurgeon advised me that the headaches were not related to the brain tumor. I had what is considered an incidental diagnosis, a few months after a car accident. My primary care doctor sent me for an MRI. Diagnosis was by MRI.
    163. from the hemorrhage, the worst headache in the world.
    164. Sharp pain, like a stab which would come and go.
    165. very occasional light headache,unique in that that they were focused in small area of left forehead, easily eliminated with ibuprofen
    166. incredible pain
    167. Pounding within both temples. Possibly the longest and most severe pain I had felt prior to surgery.
    168. shooting pains lancing across my brain that lasted only seconds - but brought on by any exertion (laughing etc)
    169. Terrible. The Dr. was treating as a sinus headache. Took all kinds of pain pills with no relief. Vomitting, severe pain
    170. pressure, could not stand myself, would put cold towels around my head, and hit my head,(tyl #3 and demerol did not work for pain), pain might go away for a few days, but I would still feels unbalance, loss vision, out of breath, then I would vomit for no reasons then pain would be unbearable. I would appears drunk to other peoples and I do not even drink.
    171. Generalized, however, they were not noteworthy.
    172. HAD PAINS IN THE NECK AND BASE OF SKULL WHICH i HAD ATTRIBUTED TO A FALL. LOOKING BACK, THE FALL WAS PROBABLY DUE TO INSTABILITY/BALANCE PROBLEMS THERE WERE DEVELOPING. i THOUGHT FOR YEARS I WAS JUST CLUMSY....
    173. Headaches did not occur until about five years into the diagnosis and were a significant factor in the decision to finally have surgery. Headaches occurred primarily in the morning upon waking, almost every morning. They dissipated as the day progressed and were helped by aspirin. Headaches disappeared immediately after surgery and did not return.
    174. Only one the day before dx. Hurt very badly all day and night with almost no relief until went in next morning for CT and the found PNET Medulloblastoma.
    175. an unbelievable, undescribeable pounding with vomitting.
    176. Constant unbearable pain in my head.
    177. migraines...severe pain followed by nausea and vomiting
    178. Migraine type headache with aura, starting on right side of face and moving behind left eye. Seeing star like light, and vomiting. Went to ER and MRI found tumor. I had been to my primary care Physician for migraines. about 7 months earlier. Tumor is in right frontal lobe.
    179. caffinee withdrawl type headache.
    180. A band across the forehead above the brow where sinus headaches normally are felt.
    181. It was like I had the flu.
    182. constant pressure
    183. more like pounding pressure, like I could hear my pulse in my brain
    184. Headaches were extremely severe. He was awake all night in pain the night before he was diagnosed. The pain was better in the morning. The headaches were there for 2 days.
    185. the pain brought me to my knees. Also vision went black
    186. Severe, sharp pain at top of head. Persistent, beyond normal headache.
    187. they were there when I woke up in the morning. then got better after I was up and took a shower.
    188. instant, usually associated with activity
    189. Headaches started when I was 12, thought to be menstrual or stress related,with adolescent mood swings. Right sided only, deep into the temporal region and the right eye socket to the back of the skull. Very painful, knifelike not dull like a hypertensive headache. Daily headaches always after school. EEG in 1974 was done becuase of the them.Vomiting didnt begin until 1988 when the undiagnosed lesion was finally found. Headaches continue still today, 34 years later from commencement.
    190. Had first headache four days before diagnosis, intermittent vomiting for 6 weeks. Headache was a sharp pain behind the eye.
    191. i would wake up with my neck and head hurting so much i thought my neck would break if i turned it wrong. my first tumor was located in the 4th ventricle and blocked the flow of CSF which is what intensified my pain.
    192. Severe pain over left eye when bending over.
    193. The headaches were like sinus headaches and this was my diagnosis for a year or more. Treated with sinus medications.
    194. severe painfull headaches that would last anywhere from 10 minutes to an hour.
    195. No head pain
    196. very intense, they were worse at the time when i was vomiting. With the headaches I became sensitive to light, nausea..and they would start in one area of my brain and continue to another area.
    197. Headaches were similar to previous sinus headaces , pressure was focused on the right side of the face, including the frontal sinus area, and behind the right eye. In my observation the difference was no refief was achieved from the regular "Motrin sinus " med. which would normally give refief, within a day if enough was taken. This headache never gave up!!!! One of the determing factors for the ER MD to take a CAT scan, headache had been building for a week.
    198. Never had headaches
    199. 200 TIMES MORE PAINFUL THAT YOUR WORST HEADACHE. UNBARABLE. LIKE A VISE GRIP SQUEZZING MY HEAD.
    200. I started having headaches when I was about 12 years old. My headaches were very excruciating, and would basically hinder me from executing my daily activities. I would end up laying down all day, and not moving all that much. It hurt when I moved around my head or body, so I remained still as much as I could.
    201. It felt like my head was going to explode. I'd get a "hot" sensation around my neck and at the top of my head and then the pain would be so bad I would pass out.
    202. Mild headaches has been going for a long time, especially in the afternoon.
    203. only had one significant headache about a month before diagnosis -- didn't think anything of it== ALSO: re the questions below about the doctor's diagnosis below: a variety of doctors missed this (an M.D. psychiatrist, who should have had some neurology in his background, totally dismissed, on at least 3 occasions, the complaints of "word-jumbling" (now known as aphasia) and the funny electric feelings up and down my husband's left arm (now known as focal seizures); an ER doc didn't do tests on his head after my husband fell down the steps; the orthopedist who saw my husband for a 6-week post injury check was the one that said he really needed to see a neurologist; my husband finally agreed to see a neurologist, and the only person I could beg his way into that day actually was a neurosurgeon friend-of-a-friend, who knew it was something significant, but thought it was probably a slow bleed from the fall down the steps, but he knew that needed to get an MRI immediately.
    204. Terrible pain just hours before emergency room visit. None before then. (see next question)
    205. Horrible pain in the middle of my forehead. Debilitating, like someone was driving a nail through my forehead.
    206. They hurt for about a month prior to the diagnosis, mostly in the back of the head. Initial guess by the doc was that it was a sinus infection. near the end pain pills lost their effectiness forcing my wife to go into the hospital where they did a brain scan.
    207. Nagging headache the day before the seizure, but not debilitating.
    208. pain radiating up the back and right side of my neck; then later a squeezing all over
    209. like those when we don't have enough coffee in the morning
    210. none experienced
    211. headaches mostly on right side of head stabbin light pains
    212. mild, quick, pinching nerve type headaches. Didn't need to take tylenol for them. Would happen every few minutes. Didn't disturb my sleep.
    213. Extrordinarily Painful
    214. My husband had only 3 headaches which led to diagnosis. The headaches were like migraines, with tunnel vision and nausea. The tunnel vision and nausea only accompanied the headaches. They were the worst headaches he'd ever had, and the pain was concentrated in the back, near the base of his skull. (His tumor is in the front, though.) A few things didn't add up to "migraine" though - migraines are usually behind the eyes, he had no light sensitivity like one does with a migraine, and we wracked our brains but could find no trigger for the headaches. Those oddities, combined with the fact that it's unusual for a 33 year old man to suddenly have migraines after never having any headaches, made us seek a neurologist quickly. Although the neurologist truly thought he was fine, adn just having migraines, he did order an MRI "to rule out a tumor or stroke." THe MRI was done immediately and led to the tumor dx. Although the neurologist suggested the MRI, we wouldn't have left the office that day without one. I had a very bad gut feeling that something was very wrong.
    215. severe across the brow and the back of neck
    216. very strong migrane type
    217. Slight headache on playing high notes on my trumpet
    218. I had these severe migranes that kept waking me up at night when laying on pillow. I could only sleep in reclining chair.
    219. Some were mild, one was really severe, (right before the diagnosis.) My sister has migraines, so I thought maybe that was what they were.
    220. facial pain on the left side
    221. No headaches
    222. The headaches/nausea always occured in the morning. And the pain was in the right frontal lobe. It was so painful all I wanted to do was lay down and rest.
    223. They would wake me in my sleep with stabbing pains in the eye that would go around my eye into my ear. Nothing that I took would relieve the pain.
    224. very small headaches; at least once a day.
    225. I had headaches for far over a year before diagnosis which were usually similar to sinus headaches, although sometimes I had migraines.
    226. If felt as if I were to take a power drill to the left side of my skull, and make a hole, I could relieve some pressure. I knew there was pressure in my head, but I thought that my sinuses were just overly filled (or so I was hoping)
    227. Did have any headaches.
    228. Pain behind the eye
    229. Constant, mild
    230. I'd had headaches for nearly 30 years -these were really intense, frequent and debilitating - I thought they might be migraines
    231. felt like being struck with a bolt of lightning
    232. dull, early morning headaches (This is what my Dad experienced)
    233. dont remember
    234. pressure inside my head with burning sensation down the back of my head
    235. headaches back of head
    236. THROBBING HEADACHES CONTINUALLY FOR TWO TO THREE WEEKS
    237. sharp pain on forehead, then pain was in back of head on the cerabellum.
    238. they were painfull
    239. i can't sleep because of headaches
    240. Like if I had been given a gun, I would had shot myself, it was so bad. I had never felt anything that bad in a long, long time (at 15, had same headaches that lasted for a couple of months, which they think now was when meningioma initially grew, then sat dormant for almost thirty years without symptoms)
    241. the whole back part of my head would hurt and continue to hurt for 4-5 days in a row. nothing worked to make it stop
    242. Just on the left side it feels weird.its not realli a headache
    243. full dullness like water on the brain sharp quick pain
    244. The headaches were in the back of my head and over my eyes. I would go to sleep and wake up with a headache. I feel as though my head is moving when they are really bad and are whooshing as though I have just taken a long run but have just been sitting down. I actually have to hold my head to be sure it is not moving in a pulsating motion up and down!
    245. Had one headache that so severe we thought possible migraine went to V.A was told low potassium level.
    246. Numb feeling above the right eye.Tumor was in the right frontal lobe.
    247. Excrutiating headache accompanied by nausea and vomitting
    248. Throbbing sensation toward the back of my head.
    249. awful, the worst headaches ever
    250. I had headaches on/off for as long as I can remember-dr thought sinus, the last year before dx it was 24/7 and meds only lasted a short time finally they didn't do much at all. The final 2 weeks before surgery I took 5/500 vicodine -- I just slept
    251. I felt like a part of my brain was being squeezed - that happened three times.
    252. Suffered from headaches and migranes most of life so not considered any different.
    253. throbbing. Relieved when vomited or rested.
    254. THE WORST HEADACHE I EVER HAD
    255. My whole head felt like it was ready to explode.
    256. First felt like a sinus cold, and treated with sinus medication with temporary relief. Progressed to 'sinus' pressure, then inability to move head when lying down.
    257. Sinus headaches
    258. excruciating, accompanied by nausea and vomiting
    259. Throbbing, particularly with change of position.
    260. I have had head aches in the back of my head most all my life.They are very painful and the only relier I get is lieing down and covering my eyes from light.
    261. Worse later in the day. Worse if you would bend over and then stand up.
    262. Intense headache, blood pressure went very high during and immediately after the headache, headache was short term.
    263. WORST HEADACHES EVER HAD
    264. My daughters couldn't explain how her headaches felt, just that her head hurt.
    265. Some were throbbing, some like an ice pick - all one sided
    266. they felt like a knife going in and out of my head repeatedly
    267. Didn't have any
    268. Did not have headaches (apparently this is very uncommon)
    269. Extreme pain and presure on left side of head, as if head was going to explode.
    270. pain behind eye as if something was pressing the eyeball
    271. I woke up with headaces (in the back of my head) every day for months. They kept getting worse, eventually with nausea. By the time I was diagnosed they were very painful, and accompanied by vomiting.
    272. i have headaches for 2 years or more that were migrains but it was the body pain that came about in the last few months and the seizure that i had that made them look at my brain cat scan and mri then they found the tumor
    273. None
    274. i don't have any headech before diagnosis.but after the 2and half month when dr. declare that i am ok with my tumor after that time i feel headech arround the head may be its from cold and synus
    275. not extremely painful, usually early morning, around forehead and temple area ..pressure headache
    276. Mine were in the morning when I first woke up and were gone by midmorning. I had them for several years and thought it was caffeine related, since they were fairly mild.
    277. sensitive aching headache
    278. Dull Eche, not servere just there and on the low right side.
    279. shocky and sudden, from the back of my neck to my eye on the left side of head.
    280. very painful
    281. sharp pains
    282. Stabbing pain around the size of the tip of my finger in my upper left forehead. Burning sensation spread from that location. Headache got worse daily over a 3 week period before Meningioma was found.
    283. The headache felt like a belt was wrapped around my skull and getting tighter every day.
    284. sharp, very strong, pounding, coming and going in horrible attacks
    285. my head pain is chronic severe,debilatating pain,extreme preasure in posterior fossa area,extreme sensitivity to light sound,noise,all symtoms worsen with the preasure and pain.all symtoms are now present more often than not. head pain never leaves,diagnosis-extremely large sub arachniod cyst in posterior fossa,told that it cannot affect me nor cause the symptoms i discribed,i also have lost some of my intellegnce? icannot speak nor spel as well as i did and it has alsowosrened. No doctor i have seen can tell me what is happening to me,i am always tiold that nothing is related but i have yet to find a docter that can tell me what is happening to me,or why it is happening. they only want to treat the symptoms ,i have had headahces since childhood,they became migraines I was told in my late teens,they progressively have grown wosre over time and since the later 90s i developed the siezures and all the rest,I wish i could find a doctor that could explain to me what is happening to my brain and my body.I had to see ten different doctors before i could get a mri and i have seen others since that cannot tell me anything other than the cyst cannot be removed becase of size and location ,the one that gets me is that i am told my heeadache and other symptoms cannoat be explain BUT i am told that nothing can be related back to the golf ball size growth in my head.
    286. no head aches
    287. I have always had hedaches most of my life they seem to be across the top ofmy eyes and I also suffer from perhaps 1 0r 2 migraines per year. i often used to wake up with a headache
    288. I use to have mygranes and would go to sleep but now they go away when they are ready it don't matter what I take or how much even if I go to sleep
    289. I had headaches since I was a teenager, young adult. In my 20s and 30s, I experienced feelings of deja vu. I wasn't dx with my tumor until I was 42, and I was told those long-ago feelings of deja vu were most likely seizures. The headaches were increasing and rarely-ending...a severe pounding on the left side of my head to the point every step I took increased the pain. My dx is also debatable. Pathology reports showed a DNET. I had my tumor sent to Johns Hopkins, and they indicated it was a glioma but they could see why my hospital thought it was a DNET.
    290. in nape of neck. didnt feel better with medicine or different positions
    291. like someone was stabbing me, could not function, sick to my stomach
    292. i woke up every morning with a sore head
    293. i constantly get headaches and they are mainly on the left side if my face/head, my left arm and leg also get tight,numb
    294. at the back of the head, base of the neck
    295. My headache came on very suddenly and was like a migraine, but with more pain in back of head.
    296. Not appliable.
    297. Only one was very bad; others were more "normal" but came nearly every day.
    298. Painful stabbing reelings. but constantly there. Also like a hand is pressing hardly on the back of my head.
    299. sometime had a throbbing sensation that would run along the right side of my head from just above my ear and move, it was a sharp pain. headaches usually ingulf my entire head. but mostly sharp pain right side of head.
    300. awaken each morning with headache, most days passes after taking pain killers
    301. like a tight band from ear to ear
    302. throbbing feeling as if it were growing.
    303. Someone splitting my head open or hitting me with a large object
    304. slight headache every morning that wasnt too painful then later in the day it would go away.
    305. eye pressure. worst ever had
    306. masive splitting headaches
    307. acute to chronic pain, with enormous pressure, that I could not get rid of.
    308. sinus
    309. the temples and back of head as well as feeling weird on the top of my head and I get dizzy from time to time.
    310. the temples and back of head as well as feeling weird on the top of my head and I get dizzy from time to time.
    311. I only had an ear ache. It felt as though someone was penetrating my ear with an ice pick
    312. They were towards the front of my head adn were sharp pains that would come and go and sometimes brought on by bright lights.
    313. hot sword going into head above right eye and exiting in back of skull on bottom left side
    314. A 25 on a scale of 1 to 10.
    315. No memory of that.
    316. I have very bad headache at night time
    317. Sinus forehead and facial pressure. Dull and nagging, daily, relieved with Motrin on a regular basis prior to diagnosis of brain tumor.
    318. close to a migraine with neasea and burning throbing pain but not all the time
    319. remained on the left side of my head only.
    320. head hurts, crackling noise, start from back then to front
    321. a bird pecking on the inside of my head
    322. sharp pain above right eyeand ariund the eye almost like and ice cream headache but worse
    323. Cannot be described, much worse and different than any other headache I have ever had.
    324. Dull, steady ache above and around eyes
    325. Sharp,stabbing headaches, some lasting only seconds. They come in clusters and are very intense, almost like a brain freeze from eating something cold.
    326. Very strong
    327. lke mild migrains behind my eyes. My tumour was the size of a manderine on the left side of my brain, so likly cause by excessve presure.
    328. migranes
    329. Pounding, throbing & continuos.
    330. I had a couple of very severe events. The pain was intolerable, my head felt like a water balloon, it caused severe pain to move my eyes, my whole body felt tight.
    331. Sort of like a migraine but with no nausea.
    332. was getting treated for virtigo as i had bad ear pain
    333. slow throbs
    334. Very mild headaches, which I never had a history of headaches before this
    335. Sharp stabbing pains at the base of my neck, behind left eye and center of head.
    336. sharp pains coursing through my head like knives they moved a lot and lasted for ages
    337. it feels like every movement i make i lift my head,i fel like something is moving and it only happens on the left side of my temple
    338. Just felt like a headache
    339. I was about to fall down and i felt dizy too
    340. sever pain
    341. strong with great long lasting pain
    342. Intense pressure -- feeling as though my brain was in a vice.
    343. I felt bad, if felt if my head was going the side
    344. not diagnosed yet
    345. A pressure type of headache that was always in one area.
    346. regular headaches, was taking over the counter medicine every 4 hours like it was candy.
    347. no
    348. no
    349. More like shooting pains. Left Parietal area. wouls occasionally radiate to front of head only on left side.
    350. left side pain by the ear worse in the morning
    351. I had a dull headache that lasted for three days straight, and nothing aleviated it.
    352. Presure, throbbing, neck pain
    353. Intense pain at the back of my head and neck and shoulders sometimes too.
    354. Throbbing pain that made it impossible to concentate. I thought they were stress headaches but found out the hard way that they weren't.
    355. I have had headache now for 15 - 20 years and up till the last 5 or 6 years was always told that they where just stress or sinus headache about 5 and ahalf years ago all the stress and sinus Medication I was taking stopped working and in desberation tried Imatrix and that stopped that Headaches that I was having at that time. So the Doctor told me that if the Imatrix works it must be a Mirgrain!
    356. The aches started in the upper neck, getting stonger and taking the wehole head
    357. worse when lying down
    358. I had a hard pain in my temple, that felt very deep. Nobody could figure out if it was caused by a tooth or my sinuses. I also had a very severe sharp shooting pain that came and went.
    359. BURNING, EXTREME PAIN, CANNOT TOLERATE LIGHT AND SOUND
    360. At times my headaches are intense but most of the time it feels like a stresss headache. I have pressure in my ears and my vision is cloudy or blurred.
    361. usually in front on sides fom head some times on right side only
    362. very strong headaches. thought it was migraines.
    363. I had some headaches but not too many for me to consider the quantity unusual. I had one bad headache with extreme pain all night long accompanied by a slight sensation of pressure in my head. Extra strength Tylenol had no effect.
    364. constant pain
    365. violent headaches
    366. No headaches period.
    367. Tension headaches
    368. They felt like tremendous pressure pushing against the front of my head.
    369. They would wake me up at night usually and I had light sensitivity while having them. I would wake my wife up and have her get me some pain pills and that would seem to take care of it.
    370. usual morning headache...thought it was from my pillow being too soft.
    371. throbing sharp painsconstant aches
    372. Dull ache in left back side
    373. my head felt like it was being torn right down the middle.vomiting.any movement made me very ill
    374. my headaches were very painful they were the worst punding ever it felt like someone was kicking me in my head with a 20 pound shoe
    375. The absolute worst pain I could have ever imagined. The pain was so bad, it actually was about 1000 times worse than childbirth. I laid on the floor for a couple days without realizing it because I was too sick to do anything, including move.
    376. Phase wise headache in different part of brain
    377. nope
    378. pressure that lasted for 14day with no relief
    379. pain in my neck, stabbing in the side of where the tumor is
    380. it was a very sharp stabbing and burning sensation
    381. I don't have a diagnosis
    382. Like major sinus pressure, back of head aches with little or no releif from liquid advil,
    383. very heavy and unable to shift for quite some time
    384. severe headaches in one spot of my head above my eye pressure behind my left eye blacked out vision in left eye for a few seconds dizziness
    385. At first they were a dull pressure at the back of my head, worse in the morning. As the days went on, it got worse, lasted longer, and more frequent and the headache would also affect the right side of my head at the front. Eventually it was all over my head constantly.
    386. There was pain in the back of my head that actually made me cry. I would put ice on it and lie down. I also would have headaches while sleeping that would go away when I sat up. Imitrex had no effect. People said that I had a personality change, but I did not recognize it.
    387. explosive bursts of pain that resulted in loss of consciousness - one of the worst things i have ever felt in my 15 years of life
    388. constant,woke with them in forehead area and nothing helped the pain
    389. I was backing the car up to leave the house, I turned sharply to the right to look out the back window and lost my vision for about a second or two. This happened twice within 2 weeks. Headaches had worsened over this period of time.
    390. Extreame pressure on the right forehead above the sinus.
    391. pressure one side of my head
    392. I had nausea and my teethe felt like I had a bad tooth nerve. I soon after started noticing I was havin word troubles.
    393. Not too bad because I had already adapted to my frequent headaches, I had it for a LONG TIME!
    394. light short
    395. i felt like someone is shaking my brain not just my head.its more like a big waves in the sea.
    396. None
    397. like my head was going to explode and felt very hot
    398. Very strong from the top to the back of my head
    399. not real hurtful but several times a day. Especially if I lay my head on back of the sofa.
    400. Sharp pains
    401. i suffered vertigo for the last 6 years, the world revolve around me, pain in the right side of face, bad migraine,
    402. No headaches
    403. deep behind left eye, not shrp and controlable with paracetamol
    404. on the one side of my head its very painful and it haappenes everyday my head is always burning and i feel dizzy
    405. dull aching
    406. it felt like my brain was exploding
    407. No headaches
    408. I only began having headaches after I had a sudden vision change not before. Now the headaches are a regular thing. Eyesight has cleared up some I don't see double anymore and my equalibrium is better but I still have a tingling sensation in my left leg and arm
    409. Deadly. I could not get out of bed. Like an ice cream headache that wouldn't go away. More pain than ever.
    410. its like sever acute pain in brain which is hitting left side.many time a day.
    411. Normal headaches, but more often than normal.
    412. like a sharp knife going into jour brain.
    413. concentrated at the front centre of my forehead and then pounding all over my head
    414. As my brain will burst in a short time.
    415. pounding a throbing i had them everyday all day
    416. no
    417. Migraines, loss of vision in one eye, slurred speech, wrong words, numbness in one side of body.
    418. Migraines...left side numbness, right side vision loss, vascular migraines
    419. very strong headaches that didn't last too long and, at the same time,blurred vision
    420. pressure in back of head and neck
    421. sharp pain
    422. no
    423. sometimes on one side with a terrible neck pain and sometimes with to much pressure in the head
    424. pressure left side of face
    425. so bad you did not want toopen your eyes.
    426. different an oved round ma head
    427. i had really bad migraines. my head would hurt in odd places.
    428. painful woke me up from sleep
    429. too much headache, top of the head,
    430. No
    431. Like my head was going to explode, extreme nausea, no balance, flashing lights. Still waiting for a full diagnosis please help if you can!
    432. i have been having bad headaches when i wake up in the morning and they stay with me all day.
    433. sinus
    434. headaches, tension behind the eyes and tension headaches
    435. sharp stabbing pains localized in the temporal lobe ( today have moved around from one area to another) onset in the morning lasting most of the morning. past few days have had mild headache that has lasted severeral days.
    436. low bloodpresure
    437. Heavy the whole head and neck
    438. like i was going to die and my head was exploding - i could only think - why me ? i'm only 16 years old ...
    439. before top of head now around neck leading all around head
    440. i feel like sumbody is heating me at the back side of my head.
    441. someone kicking me
    442. Pressure pushing out...Needed to take vicodin to even come close to stopping some of the pains.
    443. my headaches make it feel like my head is gonna explode,and my jaw hurts...my vison is blury ..sometimes feel week and my arm is num
    444. very painful brought on with the pressure change, usually last a few minutes.
    445. thought they were migraines needed to sleep darkness helped
    446. throbing,instant pains, hurts if u move yuor head
    447. I had headaches ALL the time but I did not think they were worthy of reporting to a dr. because I could take Advil or Motrin and it would go away.
    448. crazy pain, intense
    449. sharp pounding pains coming in attacks and sometimes not allowing function
    450. scale of one to 10 ...12
    451. horrible pain on head and face, starting from back of neck till the chin.
    452. Painful for a couple of minutes.
    453. low grade migraine from eyes to back of head or like a bad hang-over
    454. My headaches are always heavy. Extreme headache in the right front of my head and also in the back.
    455. headache near by neck
    456. I was diagnosed as having migraines from the time I was eight years old. They were very much the same in pain and occasionally I would vomit with them, nut they never woke me from my sleep. I now have many auras, wake up with nasty headaches, no relief from the pain...do not even have one day with a headache
    457. dizziness and disfunction
    458. Screaming pain for a moment and then a dull thud.
    459. My son(16 years old) discribed his headaches as a 3 to 5 second sharp pain, then would go away. He started to notice what would bring them on, like standing up too fast, using alot of force during activity. Sometime he would say they were like a headrush feeling, starting low going to high pain then back to low all during this 3 to 5 second period.
    460. My son(16 years old) discribed his headaches as a 3 to 5 second sharp pain, then would go away. He started to notice what would bring them on, like standing up too fast, using alot of force during activity. Sometime he would say they were like a headrush feeling, starting low going to high pain then back to low all during this 3 to 5 second period.
    461. dull sometimes sharp mostly on the right side to the middle of my head
    462. NO
    463. tghdn
    464. migraine, 2 days before seizure. only lasted a couple hours.
    465. just tension
    466. yes,they started one day before going to see a doctor,i had a very strong headache at my left side of forehead.it fellt like a strong preasure.i thought i had to vomitt
    467. felt like hell
    468. NUMBING PAIN, STABBING PAIN, CONSTANT, TENSE
    469. Tingling in back of head
    470. no headaches, until I encountered car accident
    471. no
    472. minor.felt sinus in nature
    473. head splintering
    474. Peircing pain in left side of the brain
    475. Peircing pain in left side of the brain
    476. headache
    477. a lot of pressure - I would take my hand and hold tight to my head
    478. they felt like somebody is beating with hammer and once the will be severe and once the head will tighted like a rope
    479. like my head wanted to explode
    480. normal on the same side of my head as my tumor (Left front lobe)
    481. Described as the worst ever imaginable. The "tumor headache"as he called it....very different from any other. Any head movement like going down stairs would bring it on or the dog jumping on the bed..these happened right before diagnosis. The ones before, usually were like migraines-behind right eye and all symptoms went on and off for years-1997 to diagnosis- 2004.Except the nausea and vomiting-that started one year prior to diagnosis.
    482. it felt like a thousands bees stung me at the one time.
    483. more deeper pain in the head than the normal headaches i use to get
    484. my headaches feel like there's like something in there banging against my head really hard.
    485. yes they felt strong
    486. Pain was all over the head and felt worse in the temporal area.
    487. Only one headache lasting two days but this was the first headache I had suffered from in over 45 years.
    488. pain top of head and behind eyes
    489. top of my head aches most of the time, sometimes wakes me up at night
    490. slight
    491. sharp pain, numbness of head, smell increased, sounds very loud, intensity never affected by tylenol stronger the headach the more nausea i had
    492. Unbearable headaches. Light agravated my pain. I laid in bed for days with a bag of ice on my head, with little relief.
    493. bad
    494. head pain in night ......need to hold the head ......... head will pain only on one side ......... if i rest my head it will be better...
    495. No
    496. Came on very suddenly like being hit in the head wsith a baseball bat, nearly knocked me over, intense pain, nausea, but over in about 5 minutes
    497. Pounding headaches that wouldn't go away
    498. thunderclap migraines on left side (tumour also primarily left side occiptal) lasting a few minutes.
    499. they felt like if someone was pocking my brain with a needle
    500. pain in the neck
    501. migrain
    502. see symptoms above
    503. no headaches whatsoever in this 2.5 year period (or since surgical resection & radiation)
    504. Can't recall them enough but do remember that I went from virtually no headaches a year to getting several in the two years before diagnosis and becoming desperate for a painkiller in the last few months, through to those having little effect on the pain. Hmm, vaguely remember spikes going through my head-- nasty with an icy edge, a feeling like a rusty object has. Very similar to some of the ones I currently have, only these 'new' ones are worse-- much more pressurized. I hafta to add that my normal doctor missed the diagnosis after a sudden numb leg and loss of cohesive cognition on a hot day-- he believed it was stroke related. Instead, a year or so later, slurred speech and thoughts, trouble finding words, leftside face/arm/leg numbness in an emergancy situtaion caused a doc to order a CT scan, looking for stroke or multiple sclerosis or hypothyroidism instead.
    505. muscles like pain
    506. The worse pain ever, in my front foer head which radiates to my middle upper in the hair.
    507. Headheach lead to the left side of the head and pressure
    508. Like a jack hammer going off full blast in my head.
    509. it wasn't like a typical headache, more like a pressure in my head
    510. They hurt on topof my head and forbear
    511. Severe throbbing - like migraines
    512. dull and suddenly sharp
    513. I had a very serious headache but when my mom noticed it is so severe she panicked.because i was puking and i wanted dark room,no noise and she was constantly rubbing my head but i was asking her to put more pressure on my head.
    514. migraine
    515. Piercing pain that would go down to my neck, into my jaw, and last a long time, days..
    516. like migrane
    517. pounding in my head,
    518. i dont know
    519. No
    520. hot burning sensation
    521. Throbing
    522. No
    523. Migranes
    524. right side throbbing
    525. no
    526. it"s like everyting is revolving
    527. Like a Jack Hammer going off full blast in my head. In a heart beat like feeling.
    528. dull
    529. pressure at the top of my head and forehead
    530. i feel its too much pain ths is like 8 years
    531. paing, imbalance, dizziness
    532. nagging but not painful
    533. throbbing on my forhead. some in the back of my head. sometimes i get this feeling like someone just split the top leftside of my head open with an axe
    534. very dull, sensitive to light
    535. very dull, sensitive to light
    536. short appx. 7 sec sharp pains in my head that happen 5-6 times a day
    537. A throbbing/stabbing pain in the back of my head and down the right side of my neck
    538. intense, sharp pain across a quarter of my head. a shooting pain that would nearly knock me off my feet. intercranial pressure had built up over years. unbeknownst to me.
    539. Pain across the forehead and down my nose also under my eyes-thought it was sinus? Headachesmostly in forhead & around the back of my head.Caused no change in vision.
    540. the headaches are all over my head and i get that i hit my dad & mum and i get pain in my body as well
    541. the headaches are all over my head and i get that i hit my dad & mum and i get pain in my body as well
    542. Like a baseball cap of horrific pain.
    543. Like a rollercoaster.. ups and downs
    544. none
    545. Like i had bad migrains
    546. Never ending
    547. loud pounding heartbeat that drowned out external sounds, earth shattering h/a's that lasted about 15 seconds, would sometimes end up on the floor with no idea how I got there, sometimes unable to see or understand what I was seeing at the time of the h/a, walking was difficult during a h/a and diving over potholes or small bumps felt like someone was slamming my head with a 300 lb weight
    548. Constant lay you out on the floor pain
    549. none
    550. sinus, migraines occasionaly
    551. migraine with nausea
    552. not severe headaches.
    553. Sharp stabbing pain in my head different from migraines.
    554. Migraines but worse. My head would go numb, my head, arms and legs still go numb and tingling
    555. Migraines but worse. My head would go numb, my head, arms and legs still go numb and tingling
    556. It felt like someone put my head into a vice grip and they lasted days. On occasion it would be like someone was stabbing me in the head on my right side.
    557. ongoing
    558. Squeezing sharp and dull pain always lingering
    559. A banging sledge hammer that blast from the back of my head right through to my left eye
    560. Increase pressure in head and short pain at times
    561. I am deeply tuoehcd as I read your blogs. Thank you for opening your heart to share the triumphs and struggles you and your family have endured.
    562. I do always dizzy
    563. I had a lot of headaches I attributed to stress, but in hindsight were most likely the tumour.
    564. Sharp global pains throughout my head, and also throbbing constant headaches with tremendous pressure like my eyes are pushed against the sockets.
    565. Bad pain in back of head upon waking and lingered during day. Didn’t have pain every day.
    566. I never had headaches before that I can didn't know the obvious cause. Like exposure to chemicals in a cleaning product used in a small space. Bad head-cold etc. In the last year I've had sharp pain that was pinpoint in location and some caused vomiting and significant vision disruption.
    567. front of head severe
    568. throbbing
    569. getting the headaches like once a month they last 24 48 hours/ feels like pressure/ squeeze to the head, a very dull ache and moves from left to right starting in the eye area
    570. right side or left side head ache i get often ,skull can be seen,nw days i becoming unconsiousness and falling down,tiredness
    571. Massive headache; pain killers did nothing to help
    572. Change in severity of migraines, and cluster headaches began. They felt like someone was boring into my head with a red hot poker, and stabbing in the eye with a knife. Any movement made the pain much worse.
    573. They usually were migraines then started on one side of neck and went up same side of my head to front of head with pain around my ear
    574. a mask from eyes down nose squeezing
    575. hang over
    576. I had headaches for years but they were getting worse (diagnosed with seasonal allergies). Then one day during orgasm I got the worse headache ever, it felt like my head was being squeezed and although the pain decreased it never went away.
    577. Whole brain throb. Not sharp, dull but never went away.
    578. N/A.
    579. Dear Ann Our thoughts and prreyas continue to be with you and Randy as you both look forward to the next steps in your journey to defeat this illness. We pray that you stay strong and not become discouraged. Having experienced this personally as my mother was diagnosed with a brain tumor my sophomore year in college when I was twenty, I can empathize with all of you and what you are going through. The ups and downs of treatment, decisions to be made, and just the day to day stuff that still has to be done, can all seem very overwhelming at times. But we do have God to lean on, and you and your family have lived out your faith in Him every day. Your attitude has given hope to so many others that are dealing with similar circumstances, and it is so heartwarming to read their messages to you. I ditto the blogger Fred, who referenced an article that was in the Pittsburgh Post Gazette just this week about a Carnegie Mellon professor who has been diagnosed with pancreatic cancer. I hope you can look it up at post-gazette.com. God's blessings to all of you.
    580. they felt like something was pressing up against my temple.
    581. bright sunlight would bring them on.
    582. I had migraine headaches which increased in frequency and duration the weeks before I suffered two tonic clonic siezures. The seizures were severe enough that the ER ran tests to determine what caused them, which led to the discovery of a brain lesion.
    583. Low grade persistant pressure, except two episodes at 3 months and 11 months before diagnosis where I had a more intense headache lasting several days with associated mild nausea.
    584. Low grade persistant pressure, except two episodes at 3 months and 11 months before diagnosis where I had a more intense headache lasting several days with associated mild nausea.
    585. Low grade persistant pressure, except two episodes at 3 months and 11 months before diagnosis where I had a more intense headache lasting several days with associated mild nausea.
    586. sharp stabbing pain
    587. Hot searing pain
    588. Everyday headaches for the pass 5 mnths its everwhere back & front, & both sides of my head.
    589. Head-splitting
    590. like a headhead and tickle in my head
    591. like migrane
    592. They are throbbing and feels like something trying to push out of my head.
    593. A headache that felt like my whole brain was sore on both days that I had the seizure. I have always had headaches, but these were different.
    594. Yes like headaches that's feel like heavy and hard like rock so I push something hard like laptop on my head and it feel good but took the laptop off my head pain come back? I don't have diagnosis and went to Doctor and they give me med but don't work so my mom give me pain killer pill and it stop than sleep and moringcome back the pain.
    595. back side of head is paining for 30 days no medicine is curing
    596. my headaches honestly at times felt so bad, they felt like ice cream or cold headaches that you get when you eat or drink something thats cold too fast.
    597. sharp shooting pain
    598. no headaches (even now in advanced stage)
    599. Pain at front of head
    600. I have not been diagnosed I'm trying to find out what is wrong with me , I've had a lump at the top of my head for some time it feels like an acorn as been pushed in there
    601. No
    602. haveyness,
    603. Instanse sharp pain for 4-5 seconds, occurring primarily in the morning
    604. Very intense deep headache from temple to temple across the forehead and from behind the eyes, also pounding sensation in the head.
    605. Very intense deep headache from temple to temple across the forehead and from behind the eyes, also pounding sensation in the head.
    606. No headaches.
    607. One sided
    608. Constant disturbing gnawing throbbing pain
    609. severe right sided results of abi headaches behind left ear severe sometimes both ears
    610. Painfull couldnt sleep
    611. Headache is slightly different from normal headache all around head intermittent pain
    612. dull headaches centered around both temples and middle of forehead
    613. no
    614. right sided migraines
    615. Like pressure in one spot of my head
    616. Very severe with nausea and vomiting. Thinking it was the flu
    617. Heavy feeling on head head pounding
    618. Like my head was going to explode.
    619. had no headaches
    620. Had occasionally had bad migraines in the past but don't think they were immediately related. On the day before I had the first major seizure (when I was sleeping) left work early and had the worst headache ever. Took migraine medication but that did nothing so tried to sleep it off (and instead hit by my first seizure).
    621. very painful like a stabbing pain
    622. headache in all of my head, dull and lasting hours.
    623. pain on right side of face or head
    624. Pounding, Hammering, dizziness, light hurts
    625. A headache like I have never felt before
    626. The worst headaches feel like a combination of a sinus headache and a migraine - all the pressure in sinus and ear plus the sharp pain and intensity of a migraine with nausea.
    627. I had HAs daily in the frontal and occipital region. Approx 2 wks before the pain on the top of my head started & I would push down on my head to achieve slight relief.
    628. The headaches began as a constant dull pain. Over several months they intensified. I went to the doctor when they were accompanied with nausea and throwing up.
    629. Banging headaches in the back and top of my head like a sledge hammer
    630. Extreme pressure, disoriented, confused,unsteady gait and recovering from labyrinthectomy
    631. It feels like am nausea but am not
    632. pounding headaches
    633. No headaches
    634. Head on the right side of my head
    635. Pressure in right side of head.
    636. Headache in eyeball with soreness and seeing specks of light
    637. No headache
    638. A lightning bolt
    639. Intense throbbing pain behind right eye and not so much behind left eye.
    640. I did have some head aches but not all the time. when I did have one it would be more like a migraine.
    641. Sharp pointed object piercing centre of head, pain upto shoulder
    642. painful
    643. dull, achy, persistent, in temples
    644. migraines with nausea, vomiting, and weakness
    645. Like my head was exploding
    646. Of the panoply of website I've pored over this has the most vecryita.
    647. Pinching and pulsing
    648. it shuts mood down, when occur suddenly
    649. Stabbing to the head aggressive but not long lasting
    650. Almost like a migraine, sometimes feeling of pressure/or like my head was going to explode in certain positions.
    651. No
    652. Like a pounding on the side of my head.
    653. No headaches
    654. Throbbing in neck ears eyes nose and neck n face
    655. i have no diagnoses i have migraines 24/7 at the base of my neck which cause weakness tingling
    656. None
    657. on rt side painful not relieved by any kind of med.
    658. Like I had a hangover
    659. Like migraines
    660. My first headache was so bad we initially thought it was meningitis. The headaches I have been having have been constant, with tension like pain where my neck meets my skull, my temples, and behind my eyes/sinuses. Sometimes I get a sharp stabbing pain coming from the general area where the lesion is.
    661. Dull pain above left ear. I thought it was an ear infection. N then all these other symptoms followed.
    662. terrble
    663. Never had a headache
    664. Answer to Who Mad the decision: It was the 3rd neurologist who finally ordered the brain scan.
    665. Horrible headaches on entire right side of head and behind the eye, always happened on the weekend I would have so many things I would want to do and would just feel so bad I couldn't do anything but just sit there.
    666. No headache in months before stroke and identification of tumor and none in 3 years since idenification and through 2 surgeries and radiation and chemo.
    667. knife stabbing pains in my head where lesions are located.
    668. my hair hurt, extreme headaches, pressure completely dibilating pain This was a epidermoid tumor that I carried for 45 years and didn't know it. I fell at home,hit my head on the coffee table and was found during a CT scan at the ER
    669. excruciating
    670. LEFT SIDE OF MY HEAD FEELS LIKE TONS OF PRESSURE IN MY EYE AS WELL A THROWING UP I SMELL BLOOD AND STRANGE OTHER THINGS
    671. painful
    672. pressure originating from the space between my ears
    673. They were migraines that would not go away even with 1000mg of medication that I cannot remember from 4 years ago. It was a knife stabbing pain on the temporal lobes that went back into my neck regions that when they were kicking would bring me down into a size of a bowling ball and tears would be pouring.
    674. tightness in my head
    675. Horrific. Migraines.
    676. Stabbing sensation pressure in rear and on left the side of head and in the left mastoid bone
    677. sharp pain, feel like getting hid with a baseball bat. i have to force myself to keep my eyes open.
    678. sharp, hot stabbing pains in the entire back of my head
    679. Pounding inside of my head sometimes it felt like a knife was going up & down inside of my head
    680. Pressure and sharp stabbing pains
    681. Pain in the right top of my head on the right side
    682. Constant dull nagging ache that never went away, but would sometimes not hurt as much as other times.
    683. pressure like head is going to pop
    684. Tension
    685. went from the top of head all the way down to my neck
    686. They felt like someone was stabbing my brain.
    687. ache and pains at the base of my skull. increased, wave-like pain when straining.
    688. Oh gosh, the most severe pain I had ever had in my life. It felt like there was crowding in my head, like with every heartbeat/pulse of blood flow to my head that the blood wasn't going to fit. With every heartbeat my head pounded from the inside out. Eventually I began also having focalized pain directly behind my right eye (where my tumor was found) and swelling around the eye and a sensation that my brain was trying to come out through my eye socket. Sounds strange but that is literally what felt like was happening
    689. Very bad aspirin naps nor eating something like someone stabbing
    690. sometimes bearable, sometimes severe headaches
    691. Excrutiating!
    692. Extremely painful.Like my head was being squeezed in a vice!
    693. Dull upon wakening, worst when moving my head felt as though it was falling off my neck..THE EAR RINGING GETS LOUDER!!
    694. no
    695. As if someone had hit me in the head with a sledgehammer.
    696. unknown
    697. Very painful head pains. It felt like my head was being ripped apart.
    698. Constant dull aching headache. Sometimes shooting pain, very hard to concentrate on anything, and overwhelming.
    699. sudden like I had been hit in the head and stabbing pain in my head some times
    700. no
    701. being hit with something in the back of head.this went on for 12 yrs.they found it when i passed out at work.they told me i was having a heart attack yeah right..
    702. nape of neck ache and deep ear canal ache
    703. nape of neck ache and deep ear canal ache
    704. I have a headache maybe once or twice a year.
    705. none that I remember
    706. Worst headaches I ever felt and pain killers stopped helping after a while, also felt sinus pressure with them
    707. not so much headaches. just feel weak
    708. Pounding constant pain
    709. Intense headache pain only during orgasm. Felt like my entire head was being squeezed. Pain lingered for several days.
    710. puslsTING
    711. throbing pain behind eye socket,and it felt like being hit with something. i woke up on the floor didn't no what happen lasted about 30 secs. they told me.thats when the company called for a ambulance and took me to a hospital.
    712. scattered all over head - never one specific area
    713. Felt like my skull was cracking
    714. on right
    715. Temples dull pain 2 back corners of head ache
    716. pressure on my brain,neck and around my eyes.
    717. Migraines
    718. I have two tumors. one right frontal lobe and one just right of the torcula. The whole right side of my head would hurt.. just a normal throbbing headache but it encompassed just the right side of my head.
    719. sharp pains on left side of my head around my eye
    720. Building pressure that felt like if it would just "pop" it would feel better.
    721. Building pressure that felt like if it would just "pop" it would feel better.
    722. very good question
    723. the headache is focused at the front of my head "forehead " and eyes .. I thought my vision is getting weak
    724. my right ear used to pain and i used to hear some sound inside my head.
    725. Constant headache on the side of the tumor
      5. How long was it from the time of the first symptoms to the day you got the diagnosis of brain tumor? (8697 responses)
       Within 1st week 1211 13.92%
       2 weeks 1012 11.64%
       3 weeks 940 10.81%
       4 weeks 907 10.43%
       1-2 months 940 10.81%
       2-4 months 923 10.61%
       5-6 months 844 9.70%
       7 months to a year 827 9.51%
       Over a year 1093 12.57%
      6. Did your doctor know right away that you had a tumor, or was it misdiagnosed at first? (2603 responses)
       Diagnosis was made the first time I told the doctor about my symptoms 1050 40.34%
       The doctor thought it was something else at first 1553 59.66%

      7. Who made the decision to do the first brain scan? (2516 responses)
       My doctor 1552 61.69%
       I had to insist on it. 964 38.31%