On a different issue, a few years ago, the medical director of Medicare told me that we will never get what we want from Medicare because the brain tumor community is not organized enough to apply pressure. We have to show them that is no longer true. We finally have a big step forward in the treatment of brain tumors and Medicare doesn't want to pay for it. This is the most important advocacy issue we face now. Trying to get additional funding for research is futile if we lose this battle because any new treatments will be expensive and if Medicare doesn't pay we won't have access anyway.
Posted on: 02/27/2019
Medicare meeting about Optune!
The meeting is on the question of should Medicare cover Optune for brain tumor patients. I know that sounds obvious but this might not go the way we want it to go. We need to show Medicare that we care about this issue. For starters, everyone should watch this video on Wednesday Morning 9am March 6, 2019.
