This policy is subject to change.
For Donors to our organization: We collect your name, contact information and possibly your relationship to brain tumors. We do not collect your credit card information. This information is used internally and is never shared or sold to any other person or organizations. We may send you a mailing at least once a year telling you of our accomplishments and requesting another donation. You can easily opt out by telling us to remove your name from our mailing list. If you do not want us to add you to the mailing list when you make a donation, in the comment section say 'Do not add me to the mailing list'.
For participants in the Virtual Trial project: We collect your detailed medical information including: You and your contact person's name and contact information, your doctor's name and contact information, as well as your diagnosis, treatment history and medical reports. We are in a collaboration with xCures and Cancer Commons to help analyze the data. We will share your information with them. None of these organizations will sell or share your personal data but might sell or share or publish the depersonalized analysis of all patients.
For visitors to our website: If you voluntarily fill out a form, we will collect the information from that form. That information will be used for the intended purposes of the form and will not be shared or sold to any other person or organization. For example, if you order a "Guide For The Newly Diagnosed", we will use your contact information to mail you a copy of the guide - but you will not be put on a mailing list.
Certain information will be collected from all visitors to any of our websites listed above.
Your web browser will automatically send and we may retain information such as:
The reports we get do NOT show your name or provide any way that we could tell who you are. They just show us aggregate information such as how our visitors got to our website, what browser they use, general location, and the language used. There is no way to opt out of this tracking.
We may keep information we collect forever. You may request that we delete all identifiable information that we have on you at any time.
IF we are compelled to divulge your information by law enforcement, we will
All of our services are free to you, including: our extensive video library, our "Guide for the newly diagnosed brain tumor patient", online support groups, extensive library of original articles, brain tumor news blast, toll free patient help line, co-payment assistance program, drug discount card program and much more.
These programs cost a lot of money to provide to you. We (the executive board of the Musella Foundation For Brain Tumor Research & Information, Inc) have decided to accept sponsorships and advertising on our website and newsletters to offset these costs, instead of charging you for this potentially life saving information. Our thoughts are that our efforts can help the most people if it is free to them, so we accept advertising and sponsorship.
Most, or all, of income from sponsorship and advertising comes from the companies that make products needed by the brain tumor community. Sponsorship is in the form of unrestricted educational grants. These companies are acknowledged on our sponsors page. There are policies in place to prevent any influence of the sponsors on the editorial content of this website.
We reserve the right to reject any advertising that is against our mission and will not accept any advertising that we feel is not in the best interest of brain tumor patients. The appearance of an advertisement on virtualtrials.org (or in our newsletters or support groups) is not an endorsement of the sponsor. We are not responsible for the content of the ads. We suggest that you look at the ads and if the product or service looks good to you, bring it to your doctors and discuss it with them. Our main purpose is to give you the information you need to find and understand the options - not to make the decisions for you.
All advertising on the site is will be clearly identified as advertising and is kept separate from editorial content - always enclosed in a box that says SPONONSORED BY or SPONSORED LINKS. .
We make every effort to provide you with balanced, responsible, encouraging, and thorough information. All content has been reviewed by health care professionals. In some cases, articles are written by non-professional patient advocates - these articles are always reviewed by a health care professional before being posted on our website. The only exception to this rule is the survivor stories - which are written by the brain tumor patient or caregiver. We feel that it is not appropriate to change their words and those articles are the opinion of the writer alone and do not reflect the opinions of our foundation.
We maintain complete editorial independence and separation from advertisers and sponsors at the site. None of the content is screened, altered, or edited by sponsors at any time.
If you purchases something from us, we will ship it within 1 week, with the exception of tickets which we usually (check event page for details) ship a few days before the event. If you need something in a hurry - call us before ordering and we can tell you if it is possible to ship it immediately!