Sponsored by
This should be tested in combination with Avastin. Might make a big impact!
Amazing number of presentations for Optune. So glad to see the brain tumor community finally embracing this new treatment option!
The Tocagen trial has just opened! Our website and clinicaltrials.gov do not have the details yet, but if you are interested in this trial, call them and ask where it is being done. This is for people with recurrent GBM or Anaplastic Astrocytoma, who are going to have surgery. There is a video on how this works at http://www.tocagen.com/toca5/
This is one of my favorite new trials. (Disclaimer: Tocagen is a sponsor of the Musella Foundation)
This is just theoretical, but it makes sense to me. Might be worth trying to add Dapsone if you are on Erlotinib. At the least it will help the rash, and at best might kill the tumor better!
This is only in 1 patient so far but may lead to a major breakthrough in the treatment of this tumor type since they reported that nearly all patients with this tumor type have the mutation this drug targets.
This is a small study, but the patients in the placebo group did better than those who took Mifepristone for meningiomas.
This is a very exciting trial. It is now open and will show up on our website and clinicaltrials.gov in a few days but you can contact them directly if you are interested. It is for newly diagnosed gbm patients only.
This has an interesting result: Using Temozolomide right after surgery compared to waiting until radiation starts resulted in a big increase in median overall survival, but a decrease in progression free survival. It makes a lot of sense to me to start the Temozolomide right away (although we have to study the effect on wound healing), but more research is needed to see why the progression free survival goes down while the overall survival goes up.
This is a major problem. All research should be reported - even negative results. Negative results are just as important, as they can prevent people from using the drug and prevent other researchers from trying the same experiments over and over again wasting time and money
Important video - talks about a new approach to finding treatments for brain tumors as well as other diseases
Dr Kesari is a friend of mine, and a great brain tumor doctor and researcher! Just wanted to let you know he moved.
Glad to hear this. They researched a particular program which requires health coaches. I would like to see research on playing free or inexpensive games that kids love, such as candy crush and Mahjong to se if it can help.
Steve has very graciously donated the proceeds of the first 6 months' sale of his book to the Musella Foundation!
This is only in the test tube and in mice, so more research is needed. This is a perfect use of the brain tumor virtual trial... we have 7 patients who used Metformin in addition to Temodar, and they seem to be doing better than average. That is not enough patients to even consider using it but it is a good start. If everyone reading this joined the virtual trial project, we would have enough data to say it is worth using - or not. Go to virtualtrials.com and click virtual trial to join and for details. It is free and easy - we do not tell you what to do - we just observe the outcome.
I need your help with this new fundraiser: we are asking that you donate your refund from this class action settlement to the Musella Foundation. We will use it to fund brain tumor research and to help patients get access to their treatments through our copayment assistance program.
We did similar fundraisers in the past, and the donations add up quickly. This is simple – takes less than 3 minutes to read and fill out a simple form. No receipts are necessary. You just enter your name, address and answer a few questions and submit the form online. No paperwork unless you like paper – in which case you can fill out the paper version and send it to us!
Please pass this along to your friends and family and ask that they also donate their refund. Share it on Facebook and Twitter! If you own a business, you can donate your company’s refund. You can ask your employer if they would consider donating.
Your donation is tax deductible, and we will send a tax receipt for the amount you generate.
This will target the cytomegalovirus, which some researchers say is associated with 100% of GBMs, so it should make a great target.
Fantastic news! The FDA acted quickly! They approved Optune for Newly Diagnosed Glioblastoma to be used in addition to the standard treatment!
It results in "the risk of progression or death was reduced by 37 percent "
We don't have much funding so it may close quickly. If you are interested, get in your paperwork quickly. It is first come first served.
The second generation Novocure device is now available in Europe. Hopefully will get FDA approval to use it in the USA soon! It is half the size and weight of the old system, and looks a lot better!
