Posted on: 06/04/2010
The Musella Foundation has recently joined with the Abigail Alliance to try to get this bill passed! You need to act now as the meeting is Thursday. We need people to show up in Washington, but if you can't, at least call or email your U.S. Representative (not Senators)!
This bill will allow access to some experimental therapies before they receive full FDA approval. There are a few really exciting brain tumor treatments in this category. (Look for other articles in this news blast and watch for another special news blast tommorrow!)
Here is the message from the Abigail Alliance:
Fm:Abigail Alliance-We need you! Hill briefing?Compassionate Access Act
Dear all,
I want to invite you to the June 10 9:00 ? 11:00 AM ET Capitol Hill
briefing on the recently reintroduced Compassionate Access Act in room
122 of the (House) Cannon Office Building (Independence Avenue and 1st
Street, SE). A light breakfast will be served.
We need you to come out to show your support for the bill, and for
the media to cover this very important lifesaving and life-extending
bill.
Abigail Alliance cofounder Steve Walker will be giving an excellent
talk and Power Point presentation. We will have a couple of patients
talking also.
After the briefing, we are asking our supporters to visit their U.S.
House Representative to lobby for the bill. Making an appointment
with your Representative?s legislation person ahead of time is
important.
The full text of the Compassionate Access Act:
Summary of the Compassionate Access Act (scroll down a bit):
Please let me know if you will be attending.
Frank Burroughs
President, Abigail Alliance for Better Access to Developmental Drugs
8881 White Orchid Place
Lorton, VA 22079
703-646-5306
HELP support the COMPASSIONATE ACCESS of 2010 Act H.R. 4732 - See the easy to
use link on our homepage to WRITE your U.S. Representative!
ALSO, the Abigail Alliance has a VERY tight budget, so your help KEEPS
US GOING.
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