Al's Comment:

 This is very scary - about 7% of the time when a parent is told their child has a DIPG (from reading an MRI)  the doctor is wrong.  These tumors are rare - so most neuro-radiologists do not see enough of them to be experts in it.  This is why you need a second opinion on the reading of the MRI.  All DIPG and DMG patients should join the DIPG registry. In the USA it is at and internationally at  Both will have experts review your MRI for free and let you have a free consultation with experts. The Musella Foundation helped fund a small part of these registries and consultation programs via our participation in the DIPG Collaborative. We also offer similar services to Glioblastoma patients with our registry at

Posted on: 06/01/2022

Accuracy of central neuro-imaging review of DIPG compared with histopathology in the International DIPG Registry


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