Update 5/17/2020: Since my last update, my wife, myself and our oldest son have moved to Florida in 2017. Not long after we moved to Florida, my wife became pregnant with our second son, Tatum.
I continue to travel to Henry Ford in Detroit, Michigan for treatment of my Anaplastic Astrocytoma. I also see a team of doctors locally at Moffitt Cancer Center.
My Tocagen trial has recently been cancelled; however, they are still allowing me to take part in it. I travel every three months to Henry Ford to be seen by my doctor and receive my medication.
Life is busy and always changing.
I would just like to say, when given a diagnosis don't let anyone tell you your prognosis. Keep your faith strong and fight. I started thinking that way after I was diagnosed and I have outlived what my first doctor told me. Keep up the fight. My wife and I are here for all of you that have been diagnosed or are caregivers. Caregivers please feel free to reach out. My wife Sarah is more than willing to talk with you. Being a caregiver I believe is a difficult job, and is under appreciated by the patient. As a patient I have taken notice and tell my wife thanks for just being there for me.