These links are maintained by Jim Kenzig,
In Loving Memory of his daughter, Kristen.

Kristen artwork
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Newest Links

278 links found

Site Name DescriptionVisitedDate Added
Flight to Remember For hospice patients, they will give you a drone video of your favorite place 8805/24/21
Can Do MS Can Do MS delivers health and wellness education programs to help families living with MS thrive. 26208/04/20
Caregivers Guide to Multiple Sclerosis in Children From Healthline, the caregivers guide to Multiple Sclerosis in Children 16408/04/20
Cleveland Clinic Brain Surgery Department Page at Cleveland Clinic on Brain Surgery 35108/04/20
Cleveland Clinic Brain Tumor Research and Clinical Trials Page at Cleveland Clinic for Brain Tumor Research and Trials 24808/04/20
Good Days Financial Assistance Program To lift the burdens of illness that force people to choose between available care and the necessities of everyday life. 21508/04/20
How Multiple Sclerosis Affects the Family A guide from on how Multiple Sclerosis can affect family members 17408/04/20
MSBucket Resources, education, support and treatment information for Multiple Sclerosis 17508/04/20
Multiple Sclerosis Glossary of Terms A large glossary of all the terms used in the treatment of Multiple Sclerosis 19808/04/20
MultipleSclerosis.Net Articles and Information on Multiple Sclerosis At we empower patients and caregivers to take control of MS by providing a platform to learn, educate, and connect with peers and healthcare professionals 16908/04/20
Needy Meds Find Help with the cost of Medicine 27708/04/20
Reddit Discussions on Multiple Sclerosis Multiple Reddit users discuss Multiple Sclerosis issues 17508/04/20
The Assistance Fund The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. 27708/04/20
The Multiple Sclerosis Association of America The Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support. 17608/04/20
The Multiple Sclerosis Foundation The Multiple Sclerosis Foundation, known in the MS community as MS Focus, is a nonprofit organization focused on providing free services that address the critical needs of people with MS and their families, helping them maintain the best quality of life. 18108/04/20
The PAN Foundation (Patient Access Network) The PAN Foundation offers financial assistance grants for a variety of diseases and drugs 21608/04/20
Ampyra Ampyra, also known as "The Walking Pill" and by the drug name dafampridine, is one of the few types of Drugs that actually attempt to help MS symptoms. Ampyra is made to help patients walk faster and achieve better balance. It does help some patients achieve much better results. 17808/03/20
Aubagio Oral treatment for Multiple Sclerosis Aubagio is an Oral Disease Modifying Drug for Multiple Sclerosis made by Genzyme also known as Teriflunomide. 17208/03/20
Copaxone Injectable for Multiple Sclerosis Copaxone is an injectable drug taken daily or three times per week for Multiple Sclerosis 18808/03/20
Gilenya Oral drug for Multiple Sclerosis Gilenya is an Oral Disease Modifying Drug Made by Novartis also know by the name Fingolimod. 24908/03/20
Lemtrada Injectable Infusion for Multiple Sclerosis Lemtrada is an injectable infusion taken for a full week and only once per year. It is also known as alemtuzumab and like Tysabri is a monoclonal antibody drug. 17408/03/20
Mavenclad Oral Pill for treatment of Multiple Sclerosis MAVENCLAD® (cladribine) tablets is indicated for the treatment of relapsing forms of multiple sclerosis (MS), to include relapsing-remitting disease and active secondary progressive disease in adults. 17108/03/20
Mayzent Oral Pill for treatment of Secondary Progressive Multiple Sclerosis Mayzent is a pill for active secondary progressive multiple sclerosis 18908/03/20
MSworld.Org Multiple Sclerosis Organization We are here to provide support and information to people living with multiple sclerosis. MSWorld offers chat rooms, message boards, a wellness center, creative center, resource center, conference center, an arcade and social networking. 16408/03/20
National Multiple Sclerosis Society People affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever. 17408/03/20
Ocrevus Infusion for treatment of Multiple Sclerosis Ocrevus is an infusion drug for both relapsing and progressive Multiple Sclerosis.The first infusion is split over 2 weeks and consecutive infusions are given every six months. No PML has been reported as yet with this drug however it does carry some risk. 17608/03/20
Plegridy Injectable for the treatment of Multiple Sclerosis Plegridy is an injectable Disease Modifying Drug made by Biogen also nown as peginterferon beta-a. The drug is similar to Avonex only it is not given as requently. 19508/03/20
Rebif Injectable for treatment of Multiple Sclerosis Rebif is an injectable Disease Modifying Drug made by EMD Serono also known as interferon beta 1-a. 18708/03/20
Tecfidera an Oral treatment for Multiple Sclerosis Tecfidera is a pill that is usually taken twice per day for Relapsing Remitting Multiple Sclerosis 18008/03/20
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Kenzig.MS Links to Multiple Sclerosis events and More Links to Multiple Sclerosis Events Pages, as well as links to payment assistance for Multiple Sclerosis 29308/02/20
Brain Tumor Singapore Brain Tumor Foundation 2,59806/25/19
Xanthoastrocytoma xanthoastrocytoma blog 30206/12/19
The Recovery Village Grief is an intensely emotional and natural response to loss. 31709/04/18
Follow a memoir in progress Karen writes about the lessons she learned from her son`s 20 year SUCCESSFUL rumble with a pylocytic astrocytoma. Please click on the link to follow her journey. 71105/04/18
Braintumour Foundation The Netherlands Finding a cure by stimulating brain tumour research fund 80201/12/18
Cancer Hope Network Matches cancer patients or family members (including those with malignant brain tumors) with trained volunteer cancer survivors who themselves have had a similar cancer experience. 1,53701/27/16
Team Amber Supporting Brain Cancer Awareness. Helping one family at a time. 4,90111/28/15
iSTAR (Initiative for the Study and Advanced AT/RT Research). Atypical teratoid rhabdod tumor (AT/RT). 3,59510/10/13
Epidermoid Brain Tumor Society Epidermoid Brain Tumor Society 6,28805/09/12
The Social Security and Disability Resource Center The Social Security and Disability Resource Center ( is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. The site’s author is a former disability examiner for the social security administration. 43,07211/09/11
German Brain Tumour Assoziation The Deutsche Hirntumorhilfe e.V. - a brain tumour association registered in Germany - was established in 1998. It is the only organisation in German-speaking countries dedicated to providing information and support to brain tumour patients. 4,84110/03/11
The Preston Robert Tisch Brain Tumor Center at Duke University Medical Center one of the largest and most successful in the field. It has received the highest rating of 12,63209/27/11
Brain Tumour Supoort Brain tumour support organisation in Western Australia offering assistance to people with brain tumour, their family, and carers. 5,56606/30/11
Find a doctor at is a great source for comprehensive medical information on over 720,000 doctors nationwide. Our site offers consumers free information on doctors’ practices and specialties, consumer reviews, recommendations from other doctors as well as free physician profiles. 5,33906/16/11
Cancer Treatment Options and Management A personalized cancer research company that informs and educates cancer patients on recent peer review cancer research for their specific case. 13,49005/19/11
Site in Australia that provides support and treatment to brain tumour patients Australia Brain Tumour Alliance 10,64102/26/11
Epilepsy Resources Epilepsy Resources 9,01612/04/10
National Cancer network Guidelines. These are the official guidelines of standard treatments for all types of brain tumors. Registration is required but is free. 65,06909/02/10
Beyin Tümörü Tedavisi Türkiye A Brain tumor patient support group established in Turkey 10,56806/29/10
Healing Care Resources This site shares how dying people teach us to enter into soul awareness and heal from our grief. 7,34806/13/10
Boston Medical Center CyberKnife Boston Medical Center`s CyberKnife program offers state of the art, image-guided robotic radiosurgery with frameless technology 27,01803/10/09
BT Buddies A website for high grade brain tumour patients, their families, friends and caregivers living in the UK. 23,99801/28/09
Advent Health Neuro Institute amma Knife is non-invasive surgery for brain tumors, inoperable brain lesions, malignant tumors, tuberous sclerosis, metastatic brain cancer, trigeminal neuralgia and rarer cancerous brain tumors. 11,51210/21/08
ClinicalConnection, Inc. Clinincal Trials 15,23808/25/08
Mimi`s Story: Her Journey with GBM A memorial diary which chronicles my mother, Charlotte`s, journey with Glioblastoma Multiforme: onset of symptoms, diagnosis, medical options, hospice care, her passing and afterwards. One woman`s story through the eyes of her daughter. 24,14303/13/08
Akron Children`s Hospital Brain Tumor Surgery Center Akron Children`s Hospital uses the most advanced, image-guided neurosurgery technology available for removal of brain tumors in children and teens. 35,97802/26/08
The Matthew Larson Pediatric Brain Tumor Foundation (also known as The IronMatt Foundation Mission - To raise the awareness and funds needed to overcome pediatric brain tumors and to help the children and families affected by it. 13,45102/19/08
Fighting Chance Counseling, reference and resource center for patients and caregivers of all cancers across all stages of illness 13,47401/17/08
Ian`s Tumour Blog of GBM patient diagnosed August 2007 14,62410/21/07
Anatomy Charts & Anatomy Models Anatomy Warehouse supplies anatomical models, anatomy charts, medical books, fitness books and educational products for classrooms and healthcare professionals. 16,46905/22/07 - Sandor Czirjak Md, P.hD., D.Sc. Neurosureron homepage Hungarian and english language website: brain tumors, pituitary, epilepsy, surgery 22,47904/30/07
Celldex Therapeutics Developer of a vaccine therapy for brain tumors 12,25504/20/07
BT Canada This group supports brain tumor patients and caregivers and live in Canada 36,13802/24/07
CyberKnife - Astrocytoma - San Diego Cyberknife Center San Diego CyberKnife is an outpatient Center dedicated to providing image-guided radiosurgery using the CyberKnife® System. 10,97401/15/07
The Annie Appleseed Project Complementary, Alternative (CAM) from the cancer patient perspective 11,56712/05/06
NovoCure - a new device for treatingGBMs The NovoTTF-100A is a portable, investigational device for cancer treatment using TTFields – Tumor Treating Fields 18,98511/23/06
NY State Traumatic Brain Injury Waiver Program Offers assitance to NY patients with brain injuries 36,06509/22/06
Childhood Brain Tumor Memoir This website is dedicated to Sean Crooks who died in 2000 from a brain stem glioma. It promotes the award winning book Can I Take My Panda Daddy? and provides links to the organisations and websites the author and his family found invaluable. 19,44608/28/06
Mayo Clinic Brain Tumor Center Brain tumor center at the Mayo Clinic in MN, FL and AZ 172,42906/27/06
Cyberknife Center of Philadelphia Robotic Stereotactic Radiosurgery Using the Cyberknife 12,68706/25/06
Brain Tumor Treatment and Diagnosis Options at Mayo Clinic Mayo Clinic offers diagnosis and treatment options for glimoas, metastic brain tumors, pituitary tumors and meningiomas. 59,00403/20/06
3rd Annual Lauren`s First and Goal Football Camp - Sunday, June 4, 2006, Lafayette College, Easton, PA A one day, non-contact, instructional clinic to raise funds for pediatric brain tumor research. Last year over 800 players and 100 volunteer college coaches helped to raise over 74,000 for LFG. A pediatric cancer survivors Fun Day is also held during the football clinic- crafts, activities, lunch and entertainment for patients, family and friends. 50,08103/19/06
List of Notable Brain Tumor Patients A featured list at Wikipedia. Identifies dozens of celebrities and other noteworthy people and provides links to reliable sources for further reading. 14,94903/02/06
Brain Tumour Australia Inc. An Australian National not-for-profit organisation providing resources, education & support 21,15202/09/06
ULCA Neurosurgery Brain Tumor Program ULCA Neurosurgery Brain Tumor Program 201,43001/12/06
Bran Research Trust Information on Research to Brain Tumours 177,72812/20/05
AboutKidsHealth Brain Tumour Resource Centre is a comprehensive, interactive, accessible resource for families of children with a brain tumour. 26,37312/19/05
Diseases & Conditions Resource Directory for all consumer health diseases and conditions information - nutrition, cancer, diabetes, mental health, allergies, depression, anxiety and more. 12,13912/09/05
Jane Symons Follow Jane`s Progress with her fight against a GBM 15,26111/18/05
Brain Tumor Survivor Brain Tumour Survivor is a positive site of hope for those living with a brain tumour. A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise. 21,89511/17/05
Marty`s Joke of the Day Stories about Marty, his family, and his 4 sons. The youngest has brain cancer. 40,04309/14/05
Dual Diagnosis Dual diagnosis is defined by the presence of both mental 15,89208/28/05
National Brain Tumor Society Supports research & offers free patient & family support services 10,46608/08/05
PedJobs The official employment resource for the American Academy of Pediatrics 29,87306/17/05
Medulloblastoma Patient and Caregiver resources Support resources for anyone affected by medulloblastoma 12,48106/16/05
International Brain Tumour Alliance (IBTA) An alliance of support, advocacy and information groups for brain tumo(u)r patients and carers in different countries which also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours. 11,25306/10/05
Easy to Swallow A website providing Recipes for People with Chewing and Swallowing Problems, due to ill health, dental work or advancing age. 17,41304/10/05
ShuntCheck Only FDA-cleared non-invasive method to detect CSF flow in VP/VA shunts 15,78104/01/05
Skull Base Institute Minimally invasive surgery for brain tumors 117,18603/11/05
Sit Stand MRI Child & Large People 500 lbs Friendly Positinal of Pain MRI scans case studies 13,93602/01/05
Electric Scooters Electric scooters-Mobility scooters-Power scooters-Pride scooters-Handicap scooters-Scooter lifts-Medical scooters and scooter accessories. Wholesale prices with free nationwide delivery 11,87012/08/04
The Brain Tumor Foundation Providing support and resources for brain tumor patients and their loved ones 15,66811/10/04
Camp Sunshine A National retreat for children with life threatening illnesses & their families 9,22509/22/04
Acoustic Neuroma Association of New Jersey Non Profit support for patients with acoustic neuroma 18,03709/05/04
Adult Ependymoma of The Brain - A Patient`s Story data-packed (verified true) written in plain english by a patient 28,12409/04/04
University of Mississippi Brain Tumor Program 11,55508/14/04
The Infography about Malignant Glioma Resources for brain tumors 52,00504/30/04
The Cancer Nutrition Center Expert nutrition advice for cancer patients and their families 11,98503/26/04
Coalition for the Advancement of Medical Research (CAMR) Medical Research Advocates 25,10103/05/04
Cyber Museum Of Neurosurgery History of neurosurgery and brain tumor surgery! 194,02301/29/04
Legacy - where life stories live on Memorials 15,28512/29/03
South Nassau Communities Hospital Gamma Knife Center Gamma Knife Center 127,90711/11/03
Brain Science Foundation The Foundation is dedicated to supporting research, advances in clinical treatments, and improved patient care for those with meningiomas and other primary brain tumors. The BSF site has downloadable brochures about meningioma designed for patients and families as well as white papers describing medical issues related to meningioma. 19,83910/07/03 Scott Hamilton Cancer Survivors site provided by the Cleveland Clinic that has a wealth of information for patients on Chemotherapy 21,67707/26/03
Accuray - CyberKnife® "Accuray manufactures and sells the CyberKnife, a non-invasive frameless radiosurgical device that enables radiosurgery anywhere in the body using image-guided robotics. 76,70407/16/03
CyberKnife Patient Support Group (CPSG) 86,07407/16/03
Brain Tumor Medical Database The resource is a collection of references to the technical medical literature on all aspects of brain tumors and includes references on promising alternative therapies and current experimental treatments. 146,12306/14/03
OHSU Pituitary Unit A comprehensive treatment center for the management of pituitary tumors and diseases of the pituitary gland 15,00204/28/03
Medifocus Guidebook on Chronic Lymphocytic Leukemia Comprehensive overview of chronic lymphocytic leukemia, including treatment options and medical journal abstracts. 19,00304/10/03
Dana Farber Cancer Institute Major brain tumor center 158,70104/02/03
THE Brain Trust meningioma internet support group Meningioma support 14,59703/08/03
Wigs for Kids wigs for kids, donations 20,59703/04/03
Meningioma Mommas An online support group for women with meningioma brain tumors. 28,13002/27/03
My Cancer News Cancer treatment search engine finds news of newest financial help for cancer patients and families. 26,58401/25/03
Roberts Review of New Cancer Treatments Cancer Portal: Easily locate newest treatments,drugs, cures, breakthroughs (sorted by cancer type) from 2500+ medical journals, treatment centers, FDA trials, Nt`l Cancer Inst., etc 19,21601/25/03
University of Maryland Brain Tumor Center Specializes in treatment and care for patients with all types of neurologic malignancies 11,39312/03/02
University of Maryland Gamma Knife Center Offers an alternative for many patients for whom traditional brain surgery is not an option 18,66012/03/02
University of Maryland Greenebaum Cancer Center A premier cancer research and treatment center devoted to providing cutting-edge therapies and individualized care for cancer patients 33,64912/03/02
MIDCO Corporation Maker of Computer Assisted Stereotactic Surgery (CASS) Imaging and Planning Systems 20,25911/11/02
The Healing Exchange BRAIN TRUST online support group -- The Meningioma List 11,28311/03/02
The American Cancer Society Cellular Phones and Risk of Brain Tumors This column is provided to help practitioners discuss potential environmental and workplace carcinogens, offering reassurance when patients` fears are unfounded and focusing legitimate concern when they are warran 22,33510/24/02
Inspiration Truelly inspirational account of a Warrior and lover of life 16,52710/21/02
GBM Distance Healing Project A study to determine if prayer can influence the outcome of a GBM 21,28807/22/02
The Connecticut Hospice The Connecticut Hospice inaugurated hospice care in America in 1974. Since then, it has been the beacon and teacher of the growing hospice movement throughout the nation, and beyond. Connecticut Hospice addresses physical,spiritual, social, and emotional needs of patients with advanced irreversible illness, and their families. Such care is provided regardless of diagnosis and as long as the Hospice level of care is needed by the patients. 11,24907/01/02
SDRT Astro Fund support to Low Grade Glioma patients and cares as well as raise money for research 35,78005/20/02
Mercy Medical Travel Assistance Free / discounted air fare for brain tumor patients 24,50505/06/02
MedFriendly Free medical dictionary with easy to understand entries. 25,24205/01/02
Neuro-oncology journal Medical journal - technical 10,35704/01/02
Neurosurgery Online For doctors, but a lotof useful information patients can appreciate 15,03004/01/02
Pub Med Search for articles on brain tumors. Free. Like medline. 15,20604/01/02
Scott Vickroy`s survivor story Aggressive treatment over 9 months included high-dose chemo and a stem cell rescue 22,28603/18/02
Neuro-Oncology Program @ Moffitt Cancer Center Neuro-Oncology Program located in Tampa, Florida. Moffitt is a NCI Comprehensive Cancer Center. Our program is part of the national CNS consortium, NABTT. 123,83002/21/02
Craniopharyngioma online support group For craniopharyngioma patients and caregivers 13,59001/12/02
Faith Emily Altbush This site is dedicated to the memory of our daughter who was taken from us by a diffuse pontine glioma. We have included a number of articles to help you understand what Faith endured, how much she meant to us and how we coped with her illness 24,00301/06/02
Journal of Postgraduate Medicine A peer-reviewed periodical indexed with MEDLINE and EMBASE with free full-text access to articles. 10,79911/16/01
Locks of Love how people can donate hair for wigs for people losing hair to chemotherapy 24,55710/18/01
Yahoo Group: Meningioma Support and Information This is a place to share our stories, our hopes, our questions, and our frustrations about meningioma brain tumors. Please let us hear from you. 20,16309/18/01
The Brad Kaminsky Foundation for Brain Tumor Research Brain Tumor Organizations 10,57709/12/01
Brainstem Gliomas from Neurology to Neuro Oncology A very well written page outlining brainstem gliomas, their symptoms and their treatment 18,47209/03/01
Sarcoma Alliance 14,70208/24/01
The Doe Report The Doe Report is the Internet`s largest library of medical demonstrative evidence for attorneys, containing thousands of exhibits, illustrations, anatomical models, and medical research. 10,54908/13/01
The Healing Exchange BRAIN TRUST Internet-based support groups for people who have brain tumors and other neurological abnormalities. 25,75904/24/01
Mount Sinai Medical Center Brain Tumor Program Mount Sinai Medical Center Brain Tumor Program 55,76504/19/01
Gamma Knife Radiosurgery and Immunotherapy for Brain Tumors All types of brain tumors and their treatments described 103,29704/09/01
NEW CANCER TREATMENTS, cures, research breakthroughs reported daily! Latest cancer news (by type) from 2500+ medical and research journals, FDA, and other sources 175,97804/09/01
Austin`s Miracle Fund Charity organization assisting children with brain cancer. 38,35801/12/01
Select Review in Neuro - Oncology 13,81310/18/00
The David A. Nass, Jr. Memorial Foundation Empowerment of brain cancer patients through knowledge of the system; focuses on patient rights regarding experientmental treatment, including access to information and access to promising experimental treatment. 10,34110/04/00
Karmanos Cancer Institute Brain tumor research / treatment center 16,11008/18/00
American Brain Tumor Association ABTA is a non-profit,independent organization dedicated to providing research funding, education matierials and resource information and advocacy. 20,25607/18/00
Hospice Patients Alliance: Consumer Advocates providing complete information on hospice services, levels of care, standards of care and regulations right on our site, free assistance in resolving difficulties, publish: Family Guide to Hospice Care (more than 300 pages) 34,60606/16/00
Drug Assistance Programs - Free Drugs! Tells how you can get free or reduced price drugs if you can`t afford them 37,82305/25/00
Fairview University Childrens Hospital One of the most unique features of the Fairview Children’s Web site is a database-driven research resource containing the most updated medical information available from Fairview. This database includes data on: Childhood cancer Tumors Diabetes Heart co 11,02305/11/00
UCLA Neuro-Oncology Program: A leading comprehensive brain tumor program, using molecular diagnostic & gene expression analysis to customize treatment plans. Offers patient support groups, cutting edge clinical trials and Infinity Online software to help predict clinical outcomes based on 10 years of retrospective treatment plans. 142,12404/12/00
Brain Stem Glioma-Everything You didn`t want to know but should. By Jim Kenzig 47,67704/09/00
Second Chance A Novel by Daniel Ovist - A full length book, available free! 10,54404/04/00
St. Jude Children`s Research Hospital Pediatric Brain Tumor Program 25,93104/04/00
Staten Island University Hospital, New York Radiation-Oncology Dept. - Has easy to read papers on brain tumors (and other cancers) for patients. 14,09204/04/00
Virtualtrials Chat Room IRC Internet Relay Chat: This loads faster, but is a little harder to set up. This can be used from WEB TV, or older computers that don`t support JAVA. Use the server: and the room: braintumor 10,34104/04/00
American Academy of Neurology Site of Neurology the Official Journal of the American Academy of Neurology abstracts and more 17,07104/03/00 The U.S. National Institutes of Health, through its National Library of Medicine, has developed to provide patients, family members and members of the public current information about clinical research studies. 19,37704/03/00
MedScape OnLine Drug and disease information 11,06504/03/00
National Institute of Health Home Page Offers health information, grants and funding opportunities for research. 28,85804/03/00
Neuropsychology Central Neuropsychology Frequently Asked Questions, Forum and Links 19,31104/03/00
PUBMED Medline at the National Institute of Health Search for medical information and abstracts 12,54104/03/00
The Department of Clinical Neurological Sciences at the University of Western Ontario. This site serves as an introduction to the Division of Neurology and as an educational forum for neurologists, residents, and practicing physicians around the country and abroad. 29,55604/03/00
The National Childrens Cancer Society 1-800-5-Family The N.C.C.S. provides direct financial assistance and emotional support to children with cancer and their families nationwide 21,74504/03/00
The NHMRC Clinical Trials Centre The NHMRC Clinical Trials Center of the University of Sydney is a leader in clinical trials research in Australia 8,93804/03/00
UCLA Brain Research Institute The Brain Research Institute (BRI) is an organized research unit (ORU) within the School of Medicine at the University of California, Los Angeles. 14,90204/03/00
University of Miami Department of Neurosurgery University of Miami Department of Neurosurgery 19,72104/03/00
All Experts Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! 24,50604/02/00
Brain Tumor Center of the Neurological Institute at Columbia University dedicated to the treatment and clinical research of primary and metastic cancers of the brain, spinal cord, and nerve roots. 18,76304/02/00
Cancer Care, Inc. a non-profit social service agency providing support to cancer patients and their families for over 50 years. Professional oncology social workers provide individual and group counseling in person, over the phone and through their web site (at no charge!) 11,86304/02/00
Carrie`s page Glioblastoma Multiforme: The Gifts of an Illness 14,42604/02/00
Center For Glioma Outcomes Research The GO Project is a voluntary, physician-directed project to improve outcomes for patients with glioma. 25,45104/02/00
CenterWatch Clinical Trials Listing Site Lists clinical trials for all types of cancers 15,80404/02/00
Environmental Causes of Childhood Cancer and Remission Information Information on suspected causes of brain and neurological cancers, and the increase in cancers found in St. Lucie County, Florida 32,44704/02/00
FDA USA Food And Drug Administration Obtain the latest information on approved drugs 19,65704/02/00
Gamma Knife Page (Elekta) Excellent explanation of how the Gamma Knife works 11,26904/02/00
Healing Your Grief When you´ve lost someone close to you 11,08704/02/00
Human Tumor Assay Journal Information on chemosensitivity testing of tumor (including brain tumor) samples! 11,03904/02/00
M.D. Anderson Cancer Center - University of Texas Cancer Center 19,18504/02/00
Medical Breakthroughs Subscribe to their free email newsletter! 15,06004/02/00
Pituitary Tumor Mailing List The Pituitary List Serve is designed for patients and care givers who have, or have had Pituitary Tumors and Disorders. 15,05304/02/00
The Brain Tumor Center at Duke Clinical Trials List of Clinical Trials at Duke University 9,47604/02/00
The Lancet The British Medical Journal 10,05504/02/00
50 Helps for the Patient who can`t speak A communication aid for patients and caregivers by Teri Kenzig 47,77603/29/00
A Starting Point: Children`s Brain and Spinal Cord Tumors This Web site links to many other Web sites with information about treatment on pediatric neuro-oncology. 21,16003/29/00
American Childhood Cancer Organization ACCO is a nonprofit organization dedicated to educating, supporting, serving, and advocating for families of children of cancer, survivors of childhood cancer, and the health care professionals who care for them 11,53203/29/00
Books on Pediatric Cancer from Amazon A listing of books on Pediatric Cancer at 20,20003/29/00
Brain Tumors in Children from the Brain Surgery Information Center Recommended reading 16,57003/29/00
Childhood Brain Tumor Foundation 301-515-2900 Resources 43,20803/29/00
Children`s Hospice International Children`s Hospice International provides a network of support for dying children and their families 21,19103/29/00
Epidermoid Brain Tumor Organization Home of the "MOIDS" 19,12003/29/00
Late Radiation Deafness in Children with Brain Stem Tumors Abstract 24,11703/29/00
Make-A-Wish Grants wishes for terminally ill children. The worlds largest granter of wishes! 40,28203/29/00
Medulloblastoma/PNET Definition from St. Judes 15,28003/29/00
National Childhood Cancer Foundation/Children`s Cancer Group (NCCF/CCG) This Web site informs the public about facts on childhood cancer, stories of cancer survivors, clinical trial information of the Children`s Cancer Group, and locations of CCG institutions. 14,16403/29/00
NCI Cancernet CancerLinks Cancernets choices for some of the best resources on the web for Cancer 14,76003/29/00
NCI Cancernet Physicians Data Query (PDQ) NCI database that contains the latest information about cancer treatment, screening, prevention, genetics, and supportive care, plus clinical trials. 29,74403/29/00
NCI PDQ on Adult Brain Tumor Patient Information 31,58903/29/00
Outlook: Life Beyond Childhood Cancer This is an interactive information and support system for long-term survivors of childhood cancer and their families. 11,36703/29/00
Picture Helps for Children who can`t read or speak A communication aid for patients and caregivers by Jim Kenzig. . Hint: Change your printer orientation setting to Landscape mode for this to print out correctly 43,49803/29/00
Search PubMed on Medulloblastoma Custom Search of Medline for Abstracts 20,31703/29/00
Search PubMed on Meningioma Custom Search of Medline for Abstracts 19,40603/29/00
Search PubMed on Neurofibromatosis Custom Search of Medline for Abstracts 18,77503/29/00
Search PubMed on Oligodendrolioma Custom Search of Medline for Abstracts 20,56403/29/00
Search PubMed on Optic Nerve Glioma Custom Search of Medline for Abstracts 18,86903/29/00
Search PubMed on Pineal Brain Tumor Custom Search of Medline for Abstracts 18,47303/29/00
Search PubMed on Pineoblastoma Custom Search of Medline for Abstracts 18,30203/29/00
Search PubMed on PNET Custom Search of PubMed for Abstracts 18,10103/29/00
The Children`s Brain Tumor Foundation (212) 448-9494 Resources 21,69703/29/00
The Children`s Tumor Foundation: Ending Neurofibromatosis Through Research 13,88903/29/00
The Childrens Miracle Network Children`s Miracle Network is a non-profit organization dedicated to helping kids by raising funds and awareness for 170 affiliated children`s hospitals. 21,03703/29/00
The Musella Foundation For Brain Tumor Research & Information 516-295-4740 The organization that maintains! 31,64003/29/00
The National Information Center for Children and Youth with Disabilities Provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22) 30,10203/29/00
The NF clinic at MGH Resources and Links 9,93203/29/00
The Pediatric Brain Tumor Foundation of the United States (PBTFUS) Seeks to find the cause and cure of brain tumors in children by supporting medical research, increasing public awareness of the disease and aiding in early detection and treatment of childhood brain tumors. 17,20603/29/00
University of Pittsburgh Center For Image-Guided Surgery Largest Gamma Knife Experience in North America 24,24103/29/00
What is Neurofibromatosis? Informational document 11,09403/29/00
About Acoustic Neuromas from the Brain Surgery Information Site 21,89903/28/00
Anaplastic ependymoma --Neuropathology Case Study Teaching file with scans 21,56703/28/00
Astrocytoma Types and Therapy from NYU Treatment of Astrocytoma 26,70003/28/00
Bereavement Support Listserv for survivors of brain tumor patients 26,80503/28/00
Brainstem Tumor Mailing List- For Patients, Caregivers, Doctors and Researchers. Moderated by Jim Kenzig 26,48303/28/00
British Columbia Cancer Agency . - Lots of good info; special segment on Alternative treatments 26,57103/28/00
Childhood Brain Tumor (PDQ®) Treatment - Health Professionals Cancernet Information for Health Professionals on Childhood Brain Tumors 21,67903/28/00
Childhood Brain Tumor (PDQ®) Treatment - Patients Cancernet Information for patients on Childhood Brain Tumors 28,61203/28/00
Choices in Brain Tumor Treatment Jim Kenzig`s views on Brain Tumor Treatment and stance on alternative medicine 15,98703/28/00
Definition of Ependymoma Brief definition from St. Judes Hospital 13,02203/28/00
Excellent online brochures from Compassionate Friends A very good resource of information on grief when a child dies. 16,33003/28/00
Gerson Therapy The Gerson Institute is a non-profit organization dedicated to the holistic treatment of degenerative disease 12,18903/28/00
Griefnet GriefNet is an Internet community consisting of more than 35 email support groups and two web sites. 11,16503/28/00
Jim Kenzig`s Astrocytoma Links Links for Astrocytoma 26,56503/28/00
Jim Kenzig`s Brain Stem Glioma Links Page and Brain Tumor Information Links Best list of Links for Brain Stem Glioma Available on the Net 18,66403/28/00
Links from Crisis, Grief, and Healing to Other Resources Good list of links and resources on Grief 13,53103/28/00
Lymphoma Research Foundation of America 10,15603/28/00
Nature Medicine Online Magazine 10,66803/28/00
Nutrition, Aids and Coping Following Brain Tumors: Making the Best of What is Left Btlinks exclusive article by Brain Tumor Patient Jim Hollens 11,76303/28/00
Search Medline for Chordoma Custom Search of Medline for Abstracts 22,15903/28/00
Search Medline for Craniopharyngioma Custom Search of Medline for Abstracts 19,44503/28/00
Search Medline for Ependymoma Custom Search of Medline for Abstracts 20,36703/28/00
Search PubMed for Acoustic Neuroma Customized search 19,17803/28/00
Search PubMed for Astrocytoma Custom Search for Abstracts 21,71503/28/00
Search PubMed for Brain Stem Glioma Custom Search for Abstracts 20,01103/28/00
Search PubMed for Ganglioglioma Custom Search of Medline for Abstracts 20,40103/28/00
Search PubMed for Glioblastoma Multiforme Custom Search of Medline for Abstracts 24,07303/28/00
Search PubMed for Lymphoma Custom Search of Medline for Abstracts 18,37703/28/00
Search PubMed for Pituitary Adenoma Custom Search for abstracts 21,22403/28/00
Search PubMed on DNT Custom Search of Medline for Abstracts 19,70503/28/00
Search Pubmed on Ganglioglioneurocytoma Custom Search of Medline for Abstracts 18,57803/28/00
Surgery in Supratentorial Low Grade Gliomas Patrick J. Kelly, M.D.,FACS 13,13703/28/00
The Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves 15,02803/28/00
A Primer of Brain Tumors from the American Brain Tumor Association A Patient`s Reference Manual Note Adobe PDF Reader is needed. 38,34603/27/00
American Cancer Society Cancer Resources 17,10103/27/00
Brain Surgery Information Center Dr. John Mangiardi`s excellent brain surgery information page 46,51003/27/00
Brain Tumor Dictionary Definitions From 18,75103/27/00
Corporate Angels Network Free Airfare This organization provides free air travel via corporate jet for ANY cancer patient who requires treatment at any nationally recognized treatment facility, without regard to their financial resources 25,54603/27/00
Decadron By Dr. Bruce Cohen Co-director of Brain Tumor Clinic at Cleveland Clinic What you need to know about this often prescribed steroid drug for reducing the swelling in brain tumors. 29,17103/27/00
Memorial Sloan Kettering Cancer Center 11,48503/27/00
MGH/Harvard Virtual Brain Tumor Page Massachusetts General Hospital Harvard Medical School Brain Tumor Center 15,50203/27/00
National Cancer Institute Cancernet 20,11603/27/00
National Cancer Institute Brain Tumor Clinical Trial Search Search NCI for cancer trial information 43,72003/27/00
NINDS Surgical Neurology Branch National Institute of Health 10,87803/27/00
Pediatric Brain Tumor Foundation of the United States Supporting the search for the cause and cure of childhood brain tumors through research. 20,37303/27/00
RXlist.Com Internet Drug Index 10,93303/27/00
San Diego Gamma Knife Center Gamma Knife RadionSurgery Medical Center 16,17203/27/00
The ABC`s of Brain Tumors from their Biology to their Treatment A Primer of Brain Tumors by John R. Mangiardi, M.D. and Howard Kane Wm. 21,27303/27/00
The Brain Tumor Society Home Page 800-770-TBTS Dedicated for providing resources to patients and families 19,02803/27/00
The Central Brain Tumor Registry of the United States a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant 17,96903/27/00
The Cleveland Clinic Department of Neurosurgery and Brain Tumor Center World Reknowned Brain Tumor Center 15,55603/27/00
The National Braintumor Foundation 800-934-CURE A not for profit organization that offers valuable resources for brain tumor patients and funds brain tumore research 26,10803/27/00
The NYUMC Brain Tumor Research Center New York University Medical Center 16,43703/27/00
The Signs of Death and How to ease a dying patient from Hospice- This excellent resource is a must read for those caring for terminally ill patients 52,57703/27/00
U.S. Department of Education/Office for Civil Rights Where to find out what rights you have as a patient in the United States 19,26103/27/00
Clinical Trials And Noteworthy Treatments For Brain Tumors Brain tumor information 63,47403/26/00

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